the adventures of a non-medical doctor "of something" with refractory epilepsy
I've been spending a fair amount of time in Wheel-Trans vehicles as of late, thanks to a seemingly endless stream of appointments in combination with the fact that I'm able to go more places independently and am taking advantage of Wheel-Trans' services for these other excursions, too. Though I usually plan to read, listen to … Continue reading Wheel-Trans Convos
Today is hard. Why? I'm tired and irritable, as I have been for the past few days. This medication taper has been messing with my system and with my ability to emotionally regulate. I've been resenting my limited independence and what I'm currently unable to do. My husband had to cancel an appointment this evening … Continue reading Downer of a Blog Post (Fair Warning)
Seizure Me can be such a jerk. Case in point: she's taken to referring to my husband as "The Dolt." In the third person. To his face. Of course, I'm forced to rely on the premise that he accurately relays her antics to me, but let's be real. What incentive does he have to tell … Continue reading The Dolt
I woke up yesterday morning to two missed calls and a voicemail from an "unknown" number. I've been doing this chronic-illness thing long enough to know that 95% of the time, if you're a heavy user of the health-care system, an unknown caller means a medical office, usually one in a hospital. Sure enough, it … Continue reading Same-Day Appointment with My Epileptologist: Success/the Beginning of a Multi-Month Pregabalin Breakup
I'm sure that I've written before about my extraordinarily cool helmet-toque.¹ I used to wear it sporadically, mostly in the weeks after a concussion, when my husband and I were particularly on edge, leading us to put safety measures in place that—yes—we should have followed at all times, not just during these periods of heightened … Continue reading New(ish) Helmet: Protecting My Head against the Perils of My Kitchen Floor Since 2017
On Monday, a friend sent me an illustration from an Instagram account that I'd never heard of (I'm now hooked). Though the artist's life experience is, of course, different from my own, I was struck by how deeply her sentiment—one that I didn't realize I shared—resonated with me. I'm guessing that a visual would be … Continue reading Inspiration Expectation: Why It’s Not OK to Want Me to “Perform” for You
For weeks, my occupational therapist talked about getting me "back" to the kitchen. I explained to her at least thrice that I was never really in the kitchen to begin with, but she either didn't want to believe me, thought that my memory was failing me, or had a faulty memory herself. And so yesterday … Continue reading Taco Monday: “Back” to the Kitchen (Alternative Subtitle: Learning How to Cook with the Help of My OT)
