Every spring for the past many, my husband and I told ourselves that we were going to make better use of our patio, which is remarkably large for one belonging to a city apartment. In March, April, May, those shoulder months when the weather is periodically warm enough to allow you to imagine being outside … Continue reading The Patio
Double Jabbed!
My husband and I both got our second Pfizer dose last Thursday. We’d been scheduled to receive it at the end of July, so it was really, really nice to be given the opportunity to change our appointment date by such a significant chunk of time. 💉💪🏻✔️ 🎉 It’s been interesting to observe that relief … Continue reading Double Jabbed!
Acquiring a New Phone, OCD Edition
Last week I finally, and, I'll add, rather triumphantly, replaced an iPhone that I'd tolerated for much longer than it'd made sense to. Before I proceed, I'll acknowledge that yes, I'm supremely aware that what I describe are problems that I'm extremely privileged to be in a position to whine about. With that out of … Continue reading Acquiring a New Phone, OCD Edition
Sun, Cautious Optimism, and Fancy New Sneakers
It's been a rough May. My city's still in COVID-19 lockdown, and until a few days ago, it was—or at least it felt like it was—an unusually cold spring. On top of that, I’ve been having health issues that I won't get into here (but probably will in my next post if I work up … Continue reading Sun, Cautious Optimism, and Fancy New Sneakers
Flannel Nighties Definitely Meant for Elderly Women: Stepping Up My Loungewear Game
Well before COVID-19 warped the realities of many workplaces and made it socially acceptable—trendy, even—to don stretchy pants to Zoom meetings, my wardrobe consisted of approximately 50% loungewear, 25% novelty T-shirts, 15% other stuff that I hardly ever wore, and 10% undergarments. Though I pulled these numbers out of thin air, I guarantee that they're … Continue reading Flannel Nighties Definitely Meant for Elderly Women: Stepping Up My Loungewear Game
Creative Solutions to Practical Problems
My husband took a well-deserved vacation last week. He spent it both relaxing and getting things done, and I spent most of it in his office, which I commandeered the Friday his time off began and quickly turned into a low(er)-stimuli retreat—my version of a spa, minus the pedicures and saunas and without the danger … Continue reading Creative Solutions to Practical Problems
Happy Purple Day!
I don't have the time or energy to write a long post, but it's Purple Day, twenty-four hours dedicated to epilepsy awareness, so I owe it to myself and to this blog to remind you that epilepsy exists, it sucks, and lots of people live with it—including me (surprise). In other words, let's all wear … Continue reading Happy Purple Day!
Hello, ER. (I Hate You, Phenytoin.)
I guess I jinxed myself with my last post about getting out of my neighbourhood—or maybe the problem was that getting out of my neighbourhood was way too exciting for my brain to handle—because two weeks ago, I made another journey to the hospital. This one unplanned, in an ambulance, and while actively seizing. It’d … Continue reading Hello, ER. (I Hate You, Phenytoin.)
A Dose of the Real World
I had an appointment with my epileptologist on Friday morning. Since he needed to check my VNS, an implanted device, I had to go to the hospital to see him. There happened to be fresh snow on the ground. I was admiring the pureness of it and pulling on my winter boots as I waited … Continue reading A Dose of the Real World
A Blip Is (Just) a Blip
It's been a challenging few weeks. My dietitian and I have been experimenting with slowly ramping up the carbohydrates in my meal plan. It's all trial and error, really, this trying to find a balance between managing my seizures and working toward my weight-gain goals. The process is rewarding when I make tangible and relatively … Continue reading A Blip Is (Just) a Blip
De Morbo Sacro: Life and/with Epilepsy 