Same-Day Appointment with My Epileptologist: Success/the Beginning of a Multi-Month Pregabalin Breakup

I woke up yesterday morning to two missed calls and a voicemail from an "unknown" number. I've been doing this chronic-illness thing long enough to know that 95% of the time, if you're a heavy user of the health-care system, an unknown caller means a medical office, usually one in a hospital. Sure enough, it … Continue reading Same-Day Appointment with My Epileptologist: Success/the Beginning of a Multi-Month Pregabalin Breakup

New(ish) Helmet: Protecting My Head against the Perils of My Kitchen Floor Since 2017

I'm sure that I've written before about my extraordinarily cool helmet-toque.¹ I used to wear it sporadically, mostly in the weeks after a concussion, when my husband and I were particularly on edge, leading us to put safety measures in place that—yes—we should have followed at all times, not just during these periods of heightened … Continue reading New(ish) Helmet: Protecting My Head against the Perils of My Kitchen Floor Since 2017

Inspiration Expectation: Why It’s Not OK to Want Me to “Perform” for You

On Monday, a friend sent me an illustration from an Instagram account that I'd never heard of (I'm now hooked). Though the artist's life experience is, of course, different from my own, I was struck by how deeply her sentiment—one that I didn't realize I shared—resonated with me. I'm guessing that a visual would be … Continue reading Inspiration Expectation: Why It’s Not OK to Want Me to “Perform” for You

Taco Monday: “Back” to the Kitchen (Alternative Subtitle: Learning How to Cook with the Help of My OT)

For weeks, my occupational therapist talked about getting me "back" to the kitchen. I explained to her at least thrice that I was never really in the kitchen to begin with, but she either didn't want to believe me, thought that my memory was failing me, or had a faulty memory herself. And so yesterday … Continue reading Taco Monday: “Back” to the Kitchen (Alternative Subtitle: Learning How to Cook with the Help of My OT)