Friday was the first day of summer, the summer solstice, and my husband's birthday. It was one of the first truly warm and sunny days of 2019, my wonderful mother-in-law was visiting, and even though I was/am still slowly emerging from a pretty rotten couple of weeks, the cause(s) of this rottenness likely triggered by … Continue reading It’s Officially Summer, and I’m Not Sure Why I’m Not Dreading the Next Few Months
Though I set myself the (completely arbitrary) goal of writing two blog posts in May, for various reasons, most of them medical, I wasn't able to follow through. It's not as if I forgot or didn't make an effort to get the job done; it's just that every time I sat down to force myself … Continue reading Redefining Productivity (Again)
My bone health has been an ongoing concern due to my anticonvulsants, several of which can cause decreased bone density, and to my eating disorder. My dread of this year's bone scan and endocrinologist appointment was not, then, entirely irrational, though it was admittedly a little extreme. Unsure whether or not I could handle the … Continue reading Endocrinology Appointment for the Weak-Boned and Strong-Willed
I’m nearing the end—I think; fingers crossed—of an episode of postictal psychosis that began a day after a cluster of seizures I had on Thursday night, continued through the weekend, and seemed to get worse Monday afternoon, perhaps because my brain decided to surprise me with another seizure cluster on Sunday evening. Of all the … Continue reading Awareness of a Different and Very Uncomfortable Variety
I recently signed up for a six-part workshop on chronic-illness self-management offered by one of my healthcare providers. I'd say I'm pretty good at self-managing my primary chronic-health condition—I do my best, anyhow—but God knows there's always room for improvement, and since I'm currently making optimizing seizure control and my recovery from anorexia nervosa my … Continue reading Self-Managing
I haven’t done much thus far to celebrate Epilepsy Awareness Month (March) or Purple Day (March 26). Though I had fantastic ambitions to throw a theme party for Purple Day, I was eventually able to acknowledge that given the energy that the tasks would require, it’s probably too soon after my latest period of seizure … Continue reading Let’s Be Aware (for Epilepsy Awareness Month)
Well, friends, the last while has been, um, interesting, at least from a seizure perspective. At the core of this interestingness have been continuing Dilantin woes. I really wish that Dilantin weren't the anticonvulsant that seems to be most effective for me in terms of seizure control, mostly because a) it's been a pain in … Continue reading (Seizure) Status
