When I was a kid, "The Christmas Angel" would stop by every four or five days beginning on December 1 and ending on Christmas Eve. Said Angel left small gifts on the kitchen table, often a piece of candy, sometimes a little toy worth a dollar or two, and her visits were eagerly anticipated and … Continue reading The Christmas Angel
Last Tuesday, bright and earlyish, my VNS (alias Vanessa) was activated. It/she is thus now doing more than just bulging out of my chest like a weird body mod. My husband and I got to the hospital with some time to spare, so we wandered around for a bit before heading to the epilepsy clinic. … Continue reading The Most Underwhelming VNS Update Ever (Yay!)
You might, but probably don't, recall that in the summer, at the urging of my occupational therapist at the neuro-rehab program that I was attending—and to which I'll return for a second block of treatment in January—I was making an effort to get "back" to the kitchen. In short, my OT was super excited about … Continue reading Back to “Back” to the Kitchen: Cookie Edition
Since the last time I blogged, I've made steady progress in the direction of adjusting to life with a VNS device implanted, cyborg-style, in my chest: I went to my family doctor and found a better solution for my nausea. I've almost completely eliminated ongoing pain by managing it with a combination of ibuprofen and … Continue reading Vanessa
Well, I did it! All went pretty much according to plan, and I now have a VNS implanted in my chest. I'd like to claim that I've roared my way into cyborg status, but so far I've been in more of a whimpering state. Roaring will have to be a longer-term goal. I meant to … Continue reading I Am Now a Cyborg: Hear Me Whimper
The time's upon us: it's Halloween, yes, but it's also the day a VNS device will be surgically implanted in my chest. My husband and I are, in fact, at the hospital waiting for my operating time. Though I was a nervous wreck yesterday and over the weekend, I'm now (relatively) calm about the whole … Continue reading It’s a Great Day to Have a Device Implanted in My Chest! (Oh, and Happy Halloween, Everyone.)
I got home from a trip with my father last Tuesday afternoon. Our vacation was lovely: a perfect mix of relaxing, spending time with family, and being distracted from my upcoming surgery. Though I had a few seizures, we had a safety plan in place, and it worked exactly as it was supposed to. The … Continue reading Post-Vacation, Pre-Op Business/Busyness
As the self-explanatory title of this blog post makes clear, it's Thanksgiving weekend here in Canada. Though 2017 has been difficult in ways that are sometimes hard for me to articulate, my Year of the Disobedient Brain has, in many respects, allowed me to better recognize my privilege and focus on the things for which … Continue reading Happy (Canadian) Thanksgiving!
Over the course of two days, it's abruptly turned from sundress-and-Birkenstocks weather to sweater-and-sneakers season. The change hasn't been entirely unwelcome; there's only so much late-September sweating I can do before agonizing over global warming starts to interfere with my enjoyment of the sunshine. It has, however, resulted in some interesting-to-me (almost definitely boring-to-you) reflections. … Continue reading It’s the End of September, and I’m Not Freaking Out
I'm a little late—what else is new?—with this, but I thought I'd write a bit about my latest visit to the neuro ward, a.k.a. my home away from home this year. First: I've been out for a while now, so yay! In fact, with the medication adjustment done in hospital, I'm super stable. In fact, … Continue reading Belated Update: Another Visit to 5B (Yeah, I Know)
De Morbo Sacro: Life and/with Epilepsy 