I was going to post this last Wednesday upon landing, but the airline lost my bag, and I temporarily lost the ability to think about anything but the fact that my beloved stuffed bear, Bear, was potentially gone forever or about the fact that the whole ordeal was really drawn-out and frustrating from start to … Continue reading Flashback … Sunday? (I Was on a Plane!)
Ready for some epilepsy real talk? Doesn't matter: the beauty of maintaining my own little corner of the internet is that I can write about (almost?) whatever I want, I'm in an honest mood, and you can stop reading and go listen to This American Life whenever you decide that visualizing me having a seizure on the … Continue reading Bathroom Seizures: Exactly What They Sound Like
Just a twenty-minute post (twenty minutes to write, not to read—I won't waste such a large portion of your awake-time on this) to let you know that my life isn't all chronic-illness-and-PhD fun. Nope: sometimes my husband and I go on random dates. Random in both the relatively unplanned sense and the appropriately bizarre one. … Continue reading Date Night
A few days ago, I read a great article in The Atlantic with the delightfully self-explanatory title "Living with Invisible Illness." This piece of writing has popped into my poor 'ol maybe-concussed head several times since. (Yep, maybe-concussed, but I don't really feel like getting into the particulars of the maybe-concussion. What a life, huh?? What … Continue reading Why I Sat in the Laundromat a Few Afternoons Ago Reflecting on the Nature of “Invisible” Illness As I Experience It
One of the words that I apply to myself most liberally is "lazy." (As I wrote that sentence, I began fantasizing about supermarket cake spread thickly with vanilla icing—the fact that I so easily and quickly equate myself with cheap dessert covered with grainy frosting, incidentally my favourite variety, perhaps bears further analysis. The comparison … Continue reading Grainy Icing on the Proverbial Grocery-Store Cake: Reflections on Laziness (Part I)
Today is my husband's and my four-year wedding anniversary, which started with a treatment that required me (read: us) to arrive at the hospital by 6:45 a.m. for a brain-traumatizing procedure. (Private-message me for deets, if you’re interested. I will also use this procedure as an excuse for typos/poor writing/etc. etc., so I apologize in … Continue reading Four Years
Two weeks ago, four days after I had been discharged the first time, I was readmitted to the hospital. The reasons for this return are complicated, meaning that I don't feel like getting into them right now, but suffice it to say that my reentry into the world of twenty-four-seven medical supervision was swift, unexpected, … Continue reading Readmission/Return
Over six weeks later, and I've finally been discharged from the hospital. Over six weeks: that's a month and a half of my life. And the saga's not over yet. Not really. Health problems of this nature aren't (surprise surprise) miraculously resolved when you're handed your discharge papers and head home. I've got a ways … Continue reading Looking Back, Moving Forward
Friday morning, I was awoken around six by the voice of a middle-aged woman. I opened one eye just enough to see that she was sporting delightfully over-the-top scrubs, the kind with a cartoon motif that assistants in pediatric dental offices wear. "I'm from the lab, sweetie; I just need to draw some blood." Of course you are. Of course you do. After looking … Continue reading Pin Cushion: Reflections on Patient Passivity
It's been almost a month. Crazy. It's been almost a month, and I'm not sure when I'll be discharged, but it definitely won't be in the next few days, and I'm secretly happy that it won't be in the next few days since a little part of me knows that it isn't time to go home yet. My … Continue reading Hitting Four Weeks and Experiencing Emotions
De Morbo Sacro: Life and/with Epilepsy 