Last Wednesday was one for the books. It was on that monumental day that my occupational therapist, a sales rep, and a technician, the latter two from a medical-equipment supplier, came in the late morning so that I could trial a power chair and so that my OT could evaluate whether or not I'm a … Continue reading Joystick
I’m in the middle of writing a few longer posts, one of which I planned to finish today. It’ll have to wait a day or two, though, because life got—is getting—in the way. “Got in the way” in the little-used positive sense of that phrase. In recent weeks/months, life hasn't been an impediment to my … Continue reading Rambling in(to) the Woods
Last weekend brought another fistful of firsts. And a plateful of cabbage rolls, but I'll get to that. After our recentish night at a downtown hotel, my husband and I immediately started plotting another trip. For a number of reasons—laziness, abundance of choice, life being busy and full, etc.—it took us a while to get … Continue reading On the Road Again
I'm not going to pretend that I didn't go into the neurology appointment I had last Thursday with a clear goal and unrealistically high hopes that I'd achieve it. Given the level of anticipatory anxiety I usually experience before most encounters with medical professionals (no matter how kind and understanding said professional may be), and … Continue reading Powering Up
I meant to write this post a month or so ago but never got around to it. This morning, though, a conversation with a friend reminded me that this, of all things, is something to document in a semi-public forum. Here I am, then, documenting it semi-publicly, basking in my own glory (what else is … Continue reading Personal Support
My husband and I have been putting real effort into transforming our apartment into a space that reflects where we are in our life rather than where we were when we moved in. Last March, we had no choice but to make design and other decisions based first and foremost on my accessibility and health … Continue reading Making Space
I don't have much to say about the solar eclipse because it's the first time I've experienced anything like it. I had a reaction I didn't quite anticipate. Though I don't live in the path of totality and wasn't dedicated enough to travel to see it in its full glory, it was truly a sight … Continue reading (Near-)Total Eclipse
I used to think that pigeons were kind of adorable. My husband and I had a funny-only-to-us habit of calling them by name (always the moniker "Signor Piccione"). Not understanding how you could possibly have a beef against what's basically a dove, I reacted with in-my-head derision when people complained about them. A symbol of … Continue reading People vs Pigeons
It's been another week full of highs. For reasons of expediency, I'll limit myself to documenting just one of them today. Rest assured, though, that you can expect more gloating in future entries. I'm currently in the lobby of my building sipping a coffee and breaking up my afternoon with a welcome change of scenery. … Continue reading And a Door Opens
I had one of those productive-but-frustrating appointments on Thursday morning, the kind that leaves me bristling with resentment in the moment but settled into a better, more balanced place a mere thirty minutes or so later. As I won't stop internet (and real-life) shouting in recent weeks, I’m in the middle of a huge developmental … Continue reading Hold On
De Morbo Sacro: Life and/with Epilepsy 