The more time passes, and the more consistently secure I feel in where things have settled with my health and my daily rhythms, the more aware I’ve become of how different my life is now as compared to how it was when I published my first De Morbo Sacro post eons ago. Back then, epilepsy … Continue reading From DMS to … DMS
When my power chair and I hit 100, it felt like a significant milestone in the coming together of one soul and one motor. We'd bonded in those first 100 km, and I remember being sure that it was impossible for woman and machine to be any closer unless in a cyborg situation such as … Continue reading When 2 Become 1,000
Hell hath no fury like a woman with a full bladder and nowhere to empty it. Scrap that: hell hath no fury like a wheelchair-using woman waiting for someone to vacate the only accessible stall in a public washroom with plenty of unoccupied toilets. And can you blame her/them/me? It's hard enough to locate a … Continue reading Stalled
One of the few happy consequences of my recent confinement was that I had plenty of time to implement stage one of my training for a 10k I’ll participate in this coming May. To the unimaginative among you, it might seem strange that I committed to a race when I can’t walk to the corner, … Continue reading In Training
For the most part, things have been going as well as could be expected in a world that’s crumbling to pieces. In the few weeks that have elapsed since my husband and I got home from our latest trip, I've managed to preserve a healthy level of that relaxed vacation energy while also diving back … Continue reading Drain of Energy
Last night just after 10:00 PM EST, I wheeled through the door, had a third dinner, unpacked because I'm constitutionally incapable of neglecting a bulging suitcase for more than thirty minutes, took a long bubble bath, then slept for eight hours straight, unheard of for me. I woke up disoriented in my own bed, half-expecting … Continue reading Same Same but Different
It's the 500-kilometre anniversary of the fortuitous pairing of me and my power wheelchair, a match made in mobility heaven. The time and distance have flown by—too fast, sometimes (I should probably do a better job moderating the speed at which I drive). My power chair isn't a part of my identity, really, but has … Continue reading And Now We Are 500
My husband and I woke up early last Thursday morning, puttered around the apartment, and took a cab to the airport. Several smooth hours later, we landed in Boston. Next was a drive to New Hampshire, where we visited friends for the weekend, going to Maine both Saturday and Sunday. Monday we spent in Boston; … Continue reading On the Road Again (Again)
While out doing my thing, minding my own business, I field countless intrusive questions and inappropriate comments from strangers, most of them well-meaning but also misguided. Although many of these encounters leave me annoyed and, often, a little amused, I usually manage to brush them off and move on in short order. I'd rather not … Continue reading Whoa
Well, it’s here. At approximately 1:13 PM last Thursday afternoon, my new power chair rolled into my apartment and forever changed my life. This might seem a gross exaggeration, but if you saw the smile that foolishly flashes across my face at the mere thought of my partner in mobility, you’d know that I'm not … Continue reading My Other Significant Other
De Morbo Sacro: Life and/with Epilepsy 