If I'm not mistaken, my last post, about travelling with my VNS, ended with something about how I was starting to get anxious about the trip back to Toronto. At the time I wrote it, I was mostly joking. It turned out, however, that those simple words were enough to jinx the homeward voyage. Not … Continue reading A Delayed Update about Delayed Travel
I kept forgetting that the Winter Olympics were going to happen this month until they started on Thursday night, at which point I immediately made my husband switch to the CBC. Men's figure skating was on, and as I stared, entranced, at that unitard-wearing athlete gliding, jumping, and spinning across the screen, I realized that, … Continue reading The Olympics Are On: Talk to You in Two Weeks
I've never consistently tracked my seizures. Here's where, before continuing with this blog post, I make excuses for my shortcomings as a seizure diarist. First, there's the memory thing. If I have a partial seizure before bed, when they usually occur, I sometimes have to be told the next morning that it happened since I'm … Continue reading Above Average
Yesterday at neuro rehab, I received the results of a (very long, multi-part) memory test that I completed with my occupational therapist last week. I'll cut right to the chase and reveal that I didn't do incredibly well. My OT was careful to sandwich the news: "You have lots of strengths; this test showed that … Continue reading That Elderly White Dude: Reflections on a Memory Test
Deep within the hospital at which I receive the majority of my care, there's a hallway featuring terracotta plaques bearing the names of individuals and organizations who/that donated to a fundraising campaign sometime in the 1980s or 1990s. The exact date slips my memory, but the style of the installation suggests that it wasn't in … Continue reading A Grateful Patient: Thanks in/for Retro Terracotta
Remember the post—I think it's this one—in which I scoffed at how my epileptologist had warned me that I'd feel a "big jolt" when he programmed my VNS and then the sensation ended up being more of a big ’ol nothing, to the point that I was concerned that there was something wrong with my … Continue reading And Behold, a Jolt!
I realize that since I live in Ontario, I have no business being surprised by super-cold temps in January. The last week or thereabouts, though, has been cold-weather-warning cold, let's-not-leave-the-house cold, three-layers-and-still-not-comfortable cold. So yeah, it's been incredibly cold, in case that wasn't clear from the previous paragraph. This quasi-arctic weather—and I say this as … Continue reading It’s Really, Really Cold, and Seizure Me Doesn’t Seem to Know or Care
Well, it's been an interesting year. I knew that 2017 wouldn't be devoid of challenges: it started, after all, with scheduled neurosurgery that had been looming over me for much of 2016. I didn't anticipate, though—I couldn't have anticipated—how many twists and turns I'd navigate from January (intracranial grids implanted, almost the entire month spent … Continue reading 2017 in Review: Looking Back, Looking Forward, Looking at the VNS Scar on My Neck Every Time I Look in the Mirror
I started playing the piano when I was a little girl and kept at it throughout my childhood. True to my personality, I (usually) took my lessons seriously, and I got better and better, as is typically the case when one practises—turns out that all those motivational posters are right. By the time I began … Continue reading Keys
You might, but probably don't, recall that in the summer, at the urging of my occupational therapist at the neuro-rehab program that I was attending—and to which I'll return for a second block of treatment in January—I was making an effort to get "back" to the kitchen. In short, my OT was super excited about … Continue reading Back to “Back” to the Kitchen: Cookie Edition
De Morbo Sacro: Life and/with Epilepsy 