At very long last, my new wheelchair arrived on Thursday. It’s a thing of beauty. More importantly, it’s mine. Not on loan from the medical supply company. Fitted for me, with everything tightened up where it ought to be. Smooth and shiny (for now, anyway). Ready for the accessories I’ll inevitably buy to make it … Continue reading New Wheels, Gotta Roll
As soon as I heard myself say it, I burst into the kind of self-aware laughter that’s been coming to me frequently and spontaneously as of late. I’d been obsessing about something I did a little compulsively (all of this in a very OCD manner, of course), and, as I am wont to do, I … Continue reading “Should I Be …”
My body and brain must miss the recreational swimming I enjoyed before I had epilepsy. Three of the last four nights, I’ve woken up in the wee hours drenched in sweat. I mean, drenched. Through-the-sheets, through-the-duvet-cover-and-the-duvet, stringy-hair drenched. Gross and uncomfortable? Yes. Disconcerting? Also a yes. I’m not particularly worried that these four-in-the-morning swimfests are … Continue reading Sleep or Swim?
A few weeks ago, I started going to a physiotherapist around the corner from our apartment. I hadn’t had any physiotherapy since leaving the hospital, and I’d begun to decompensate while waiting for PT through homecare and/or an outpatient musculoskeletal rehabilitation program I’d been referred to. When it had become evident that I needed and … Continue reading Let’s Get Physio, Physio
Late last week, a friend gave me one of the finest gifts I’ve ever received: free reign to use her label makers. She must have underestimated how much I love putting labels on stuff. It has to be one of the most satisfying tasks known to humankind; how rewarding it is, after all, to almost … Continue reading Labelling
Welcome to our household, ice maker. We love you. I’ve had a handful of nicknames over the years, none of which have really stuck. The latest? Ice Queen. This wasn’t inspired, as might be the natural assumption, by my frigidly cold soul, but rather by something more literal. Before last summer, I wasn’t a lover … Continue reading Ice Queen
I’m not someone who’s ever felt comfortable in her own skin. These insecurities have affected me differently at different times in my life. Some of their manifestations have been very damaging; others have been relatively innocuous. A running thread, though, has been my resistance both to the idea of showing my body more than necessary … Continue reading From Prude to Prud(ish)
I have very complicated feelings about my G-tube. Understandably so, I think. Its insertion, after all, was what led to the infection that led to the septic shock that led to much of what’s happened this past year. I agreed to get the G-tube in the first place because some part of me realized that … Continue reading G-Tube Troubles and Tantrums (a Ramble)
That’s right, friends. In approximately an hour and after nine months, give or take, I’ll be discharged. I’d be lying if I claimed that I’m not a little nervous. Change, especially change this big, is hard. As I wrote about in much greater detail in my last post, there are major ways in which my … Continue reading Happy Home Day!
I’ve once again let enough time elapse between posts that anxiety about how much has happened—more material for those blog entries that I always promise but never quite get around to writing—has made producing anything at all feel too overwhelming. Today, though, I somehow worked up the courage to start with a short update and … Continue reading Big Changes in the Works
De Morbo Sacro: Life and/with Epilepsy 