After a scary incident a few nights ago, my husband and I are finally in the process of doing what we've said that we would for the past I-don't-know-how-many months/years: fortifying the exit from our apartment with a high-tech (to me, at least) door alarm and with a low-tech but extra-tall baby gate. These provisions … Continue reading Fortify the Home, Contain a Wanderer: How to Sleep Better at Night
First, I'm having a lot of trouble writing these days—locating words, typing, using simple grammar without immense effort, etc. (my personal hell, if you know me well enough), so please, please, be gentle with me if you find mistakes in this post: I've decided that it's fair to blame it on the seven brain medications … Continue reading And the Saga Continues
I write this in a moment of clarity, which, these days, are few and far between. But they exist, and for that, I am grateful. (Please notice and appreciate my attempt to practice positive thinking. The current arguably lame, but very affective, thing I repeat to myself is "go with the flow." So yeah. But … Continue reading A Quick Update That I’d Rather Not Have to Make
Yesterday was momentous in that it marked the first day post-surgeries that I was allowed to wash my hair. It was glorious. It was also strange. Until this past fall, my hair stretched halfway to my waist. Then my surgery was initially scheduled, and I got a series of cuts to prepare myself for the … Continue reading Washing My (Stubbly, Pathetic) Hair: When Mundane Tasks Become Your New Excitement
I'm supposed to be recovering from Surgery #1 at this very moment. Of course, Hillary Clinton is also supposed to be president-elect of the United States. In other words, these past few weeks have offered ample evidence that it's best not to take anything for granted—surgery dates (mine having been changed twice now, in each … Continue reading How Things Change(d)
As has seemed to be the case on several occasions on this epilepsy “journey” of mine, I’ve once again gone from what’s felt like an excruciating, never-ending waiting game to a sudden, overwhelming flurry of activity. I got a call yesterday afternoon from my neurosurgeon’s office. They had a cancellation for next Friday. Could I … Continue reading (Sudden) Countdown to Craniotomy: One Week
In case the title of this post didn't clue you in, I'm about to give a brief history of my hair, inspired by the series of increasingly drastic haircuts I've been getting leading up to pre-surgery head-shaving. It is thus completely understandable, even admirable, if you choose to stop reading. Can't say I didn't warn … Continue reading Hairstory (Part I: Childhood)
I have a few other posts in the works, but in the meantime (i.e, to buy a few days while I finish them), here's a short update on how "things" are going. Short because not much is happening, since I'm currently stuck, not by choice, in a holding pattern as I . . . wait. … Continue reading Holding Pattern
... let them cut into your brain anyway? My attitude towards the procedure I'm supposed to have sometime over the next month or two (I'm still waiting for a date, which is its own kind of stressful) seems to have entered a new phase that I'll call "full-blown fear." Or, I guess, fear mixed with … Continue reading Feel the Fear and …
My husband and I have an ongoing narrative/discussion/negotiation/argument regarding how often I should wear my helmet-toque, the headgear about which I'm sure I've written in a past post (that I won't bother digging up for laziness reasons). His, probably correct, opinion: I should don it almost all the time. My fuelled-by-a-desire-to-preserve-the-last-shreds-of-dignity-in-a-life-currently-coloured-by-loss-of-control one: helmet-toque as protective … Continue reading Helmet-Toque Negotiations and the Search for (the Last Remaining Shreds of) Dignity
De Morbo Sacro: Life and/with Epilepsy 