As of last Thursday, and after two rounds of treatment, I'm officially finished my neuro day-hospital program. It feels super good. Time to reflect! Given my tendency to worry that I've plateaued or am plateauing in my recovery, I've found it important, especially over the past month or so, to keep reminding myself that I've made … Continue reading Graduation!
I'm currently prescribed five anticonvulsants. Five. Some are better than others, but each is its own special flower/beast, in terms of side-effect profile. That said, I'm grateful that I've found a combination of medications that's kept me out of the hospital since the summer.* Among the drugs currently inhabiting my blister pack is phenytoin (Dilantin), … Continue reading Dilantin, ER, Vomit: A(nother) Scattered Blog Post
I've never consistently tracked my seizures. Here's where, before continuing with this blog post, I make excuses for my shortcomings as a seizure diarist. First, there's the memory thing. If I have a partial seizure before bed, when they usually occur, I sometimes have to be told the next morning that it happened since I'm … Continue reading Above Average
Yesterday at neuro rehab, I received the results of a (very long, multi-part) memory test that I completed with my occupational therapist last week. I'll cut right to the chase and reveal that I didn't do incredibly well. My OT was careful to sandwich the news: "You have lots of strengths; this test showed that … Continue reading That Elderly White Dude: Reflections on a Memory Test
Deep within the hospital at which I receive the majority of my care, there's a hallway featuring terracotta plaques bearing the names of individuals and organizations who/that donated to a fundraising campaign sometime in the 1980s or 1990s. The exact date slips my memory, but the style of the installation suggests that it wasn't in … Continue reading A Grateful Patient: Thanks in/for Retro Terracotta
Remember the post—I think it's this one—in which I scoffed at how my epileptologist had warned me that I'd feel a "big jolt" when he programmed my VNS and then the sensation ended up being more of a big ’ol nothing, to the point that I was concerned that there was something wrong with my … Continue reading And Behold, a Jolt!
I started playing the piano when I was a little girl and kept at it throughout my childhood. True to my personality, I (usually) took my lessons seriously, and I got better and better, as is typically the case when one practises—turns out that all those motivational posters are right. By the time I began … Continue reading Keys
This has been a challenging week on several fronts. I'm only going to elaborate on the one that's directly health-related, though, since it's affecting my ability to process what else has happened and since I like to maintain a sliver of separation between my personal life and my blog existence, believe it or not. Last … Continue reading ’Tis the Season! (Christmas and Concussions)
When I was a kid, "The Christmas Angel" would stop by every four or five days beginning on December 1 and ending on Christmas Eve. Said Angel left small gifts on the kitchen table, often a piece of candy, sometimes a little toy worth a dollar or two, and her visits were eagerly anticipated and … Continue reading The Christmas Angel
You might, but probably don't, recall that in the summer, at the urging of my occupational therapist at the neuro-rehab program that I was attending—and to which I'll return for a second block of treatment in January—I was making an effort to get "back" to the kitchen. In short, my OT was super excited about … Continue reading Back to “Back” to the Kitchen: Cookie Edition
De Morbo Sacro: Life and/with Epilepsy 