This has been one of the most intensely emotional weeks of my life. And for epilepsy-surgery-related reasons, so you get to hear all about it! We've been busy preparing for my upcoming procedure, which, as regular readers are aware, was very recently scheduled for November 4th. Such little notice means/meant a lot to take care … Continue reading Surgery Delay, Intense Emotions
As has seemed to be the case on several occasions on this epilepsy “journey” of mine, I’ve once again gone from what’s felt like an excruciating, never-ending waiting game to a sudden, overwhelming flurry of activity. I got a call yesterday afternoon from my neurosurgeon’s office. They had a cancellation for next Friday. Could I … Continue reading (Sudden) Countdown to Craniotomy: One Week
I've decided to continue to grant you a brief reprieve from long-winded stories about my hair, but only because I want to talk at too-great length about the almond-shaped collection of neurons in my right temporal lobe that's been at the top, figuratively speaking, of my mind for the past few days. I've always preferred … Continue reading My Amygdala, Myself
In case the title of this post didn't clue you in, I'm about to give a brief history of my hair, inspired by the series of increasingly drastic haircuts I've been getting leading up to pre-surgery head-shaving. It is thus completely understandable, even admirable, if you choose to stop reading. Can't say I didn't warn … Continue reading Hairstory (Part I: Childhood)
I have a few other posts in the works, but in the meantime (i.e, to buy a few days while I finish them), here's a short update on how "things" are going. Short because not much is happening, since I'm currently stuck, not by choice, in a holding pattern as I . . . wait. … Continue reading Holding Pattern
... let them cut into your brain anyway? My attitude towards the procedure I'm supposed to have sometime over the next month or two (I'm still waiting for a date, which is its own kind of stressful) seems to have entered a new phase that I'll call "full-blown fear." Or, I guess, fear mixed with … Continue reading Feel the Fear and …
I had an appointment with my epileptologist yesterday that was significant in two regards. In fact, I left feeling much better than I had walking in, which isn't always the case. (Please note that the fact that I often sit in the streetcar dejected and downtrodden after discussing the misworkings of my brain is not … Continue reading It’s Like Saying Goodbye to a Horrible, Clingy Friend: I’m Finally Breaking Up with Topamax
Another detour in my quest to go more than five days without my neurons misfiring. I haven't written an update since my appointment with the neurosurgeon on Friday, in part because I'm still a little stunned and upset and in part because my husband and I were out of town for the weekend, leaving me … Continue reading A Surgical Detour to Surgery
De Morbo Sacro: Life and/with Epilepsy 