This’ll be a teaser of an update because I want to fully appreciate the present while I’m still here, in North Carolina, in a beach house with people I love. A tropical storm has been pounding the region, but I couldn’t care less because, well, I’m here, in all senses. Physically present. Emotionally present. Neurologically … Continue reading A Perfect Storm
I have a major backlog of recent successes to write about—not a bad problem, I suppose. I also have the Olympics to watch, so I'll humbly accept a gold medal in procrastination until these precious few weeks of obscure sports about which I’m suddenly extremely passionate once every four years are over, at which point … Continue reading Gold-Medal Procrastinator
I should begin by stating that I’m not a proponent of maladaptive coping strategies. I am, however, a proponent of working with what you have, so as an irremediable catastrophic thinker, I’ve taken to accepting life’s lemons and doing my best to turn them into a palatable beverage. After all, what’s the worst that could … Continue reading When Catastrophic Thinking Pays Off (Dental Edition)
A version of this post sat in my drafts folder for many weeks. I kept leaving it there because I’ve been spending most of my free time in recent days either exploring my surroundings or engaged in my newest hobby (and also because I've been procrastinating, but that goes without saying). Since this entry is … Continue reading Machine Sew, Arm Pedal
My husband and I were away this past week, this time even further from home and for a little longer than we were gone our last trip. Three nights, lots of excitement, lots of doing the right amount of nothing. Wandering, exploring, being spontaneous. It was glorious. We booked a hotel and a car a … Continue reading On the Road Again, Again
Last Wednesday was one for the books. It was on that monumental day that my occupational therapist, a sales rep, and a technician, the latter two from a medical-equipment supplier, came in the late morning so that I could trial a power chair and so that my OT could evaluate whether or not I'm a … Continue reading Joystick
I’m in the middle of writing a few longer posts, one of which I planned to finish today. It’ll have to wait a day or two, though, because life got—is getting—in the way. “Got in the way” in the little-used positive sense of that phrase. In recent weeks/months, life hasn't been an impediment to my … Continue reading Rambling in(to) the Woods
My husband and I have been putting real effort into transforming our apartment into a space that reflects where we are in our life rather than where we were when we moved in. Last March, we had no choice but to make design and other decisions based first and foremost on my accessibility and health … Continue reading Making Space
I had one of those productive-but-frustrating appointments on Thursday morning, the kind that leaves me bristling with resentment in the moment but settled into a better, more balanced place a mere thirty minutes or so later. As I won't stop internet (and real-life) shouting in recent weeks, I’m in the middle of a huge developmental … Continue reading Hold On
For the good part of a year, I found it hard to believe that I was home. Funny, then, that I'm going to celebrate the end of that year by sleeping in a bed not my own. The difference, of course, is that for the first time in what feels like forever, a night away … Continue reading Away from Home
De Morbo Sacro: Life and/with Epilepsy 