New visitors policies for this hospital system were recently announced. I was told yesterday that under the updated guidelines, my husband can now be classified as an "Essential Care Partner" and visit me twice a week for two hours at a go. My nurse was fantastic about getting the requisite paperwork filled out so that … Continue reading Ninth Wedding Anniversary: A PDA (Sorry, Husband)
Yesterday I was in the same room as my husband for the second time in three months. In a happy coincidence that I hadn't, to be perfectly honest, actually considered when I asked for another exception to the hospital's current no-visitors policy and was given permission for him to come, it was both my husband's … Continue reading Birth-Yay! (Happy Birthday, Husband)
I'm continuing to make lots of progress and am super grateful and all that, etc. etc. However, as you've probably gathered from the extensive complaining in which I've indulged in previous posts, it isn't all sunshine, unicorns, and high-energy ketogenic supplemental beverages. Although there've been many challenges, the one that's made me wallow the most … Continue reading Ask and Ye Shall Sometimes Receive
On this first day of August, I've been looking back over the last month and realizing that a major part of my doing-my-best-to-shrug-off-all-the-stuff-I-feel-powerless-about-and-thus-resent strategy in July was to repeat a simple phrase to myself, usually, but not always (being the awkward person I am), in my head. I've grown to appreciate the power of these … Continue reading July in Two Words (So What?)
I've never consistently tracked my seizures. Here's where, before continuing with this blog post, I make excuses for my shortcomings as a seizure diarist. First, there's the memory thing. If I have a partial seizure before bed, when they usually occur, I sometimes have to be told the next morning that it happened since I'm … Continue reading Above Average
When I was a kid, "The Christmas Angel" would stop by every four or five days beginning on December 1 and ending on Christmas Eve. Said Angel left small gifts on the kitchen table, often a piece of candy, sometimes a little toy worth a dollar or two, and her visits were eagerly anticipated and … Continue reading The Christmas Angel
I got my eyebrows waxed yesterday. Lest you think that I've decided to experiment with beauty blogging, let me immediately assure you that this particular eyebrow-maintenance experience is, indeed, relevant to the theme of my blog. You can also rest assured that my brows are now "on fleek," as the kids of today, or maybe … Continue reading Eyebrows and Epilepsy: Things That Are Only Tangentially Related
On Monday, a friend sent me an illustration from an Instagram account that I'd never heard of (I'm now hooked). Though the artist's life experience is, of course, different from my own, I was struck by how deeply her sentiment—one that I didn't realize I shared—resonated with me. I'm guessing that a visual would be … Continue reading Inspiration Expectation: Why It’s Not OK to Want Me to “Perform” for You
I'll start with a disclaimer: for obvious reasons, my memories of the event that's the topic of this post are kind of spotty, so I'm relying on witnesses (i.e., my husband) for much of what makes up the following. We're going to have to go ahead and assume that I wasn't being trolled when the … Continue reading Sunday Night in the ER
As April trudges steadily onward, bringing with it the promise of, um, May, warmer days are becoming increasingly frequent (even in Ontario, where eighteen-degree highs continue to alternate with seven-degree ones¹). I usually welcome spring and all that it represents with open arms, eager to be able to more comfortably spend time outdoors racking up … Continue reading Leaving the Neighbourhood and Other Things I’m Still Not Doing Much: Attempts at Gratitude
