When I was ten or so, my mom sewed a solstice dress for me to wear to winter solstice rituals. (I won’t elaborate on the yearly event, but think “simulated birth canal.”) I still have that magnificent gown, which is in a purple 1990s celestial print that could be mistaken for nothing but a relic … Continue reading Curse of the Solstice Gown
The more time passes, and the more consistently secure I feel in where things have settled with my health and my daily rhythms, the more aware I’ve become of how different my life is now as compared to how it was when I published my first De Morbo Sacro post eons ago. Back then, epilepsy … Continue reading From DMS to … DMS
It only occurred to me last night, a few days after the fact, that a two-year anniversary passed on March 7 (I think?) without my registering it. Two years and less than a week ago, I was discharged from the rehabilitation hospital and plopped back into real life. It’s now been two years, and I … Continue reading A Happily Missed Milestone
By this time last year, I was in my usual full-on, over-the-top Christmas mode. My apartment had been garishly decorated for weeks, my cards had been written and put in the mail, and my Spotify algorithm had figured out that all I listened to was Christmas music and thus suggested nothing else. I had a … Continue reading Having Myself a Merry(ish) Little Christmas
It's the 500-kilometre anniversary of the fortuitous pairing of me and my power wheelchair, a match made in mobility heaven. The time and distance have flown by—too fast, sometimes (I should probably do a better job moderating the speed at which I drive). My power chair isn't a part of my identity, really, but has … Continue reading And Now We Are 500
Last Tuesday, I was working on a forthcoming post while on the subway en route to a foot-Botox appointment. It was my second time-consuming-but-boring obligation of the afternoon, and the day had been otherwise busy, leaving me with little time to write or do other things I find more fulfilling and rewarding than running errands … Continue reading Reverse Aging? (Bye, Botox!)
… and, to be honest, I only remembered because a friend sent me a text wishing me a happy Purple Day. I’m pretty sure the fact that it totally and completely slipped my mind makes me a bad PWLWE (Person Who Lives with Epilepsy). Or maybe it has more to do with the other “stuff” … Continue reading It Was Purple Day (for Epilepsy Awareness) on Saturday
I recently wrote a longish autobiographical piece about my childhood OCD-based fear of waterslides. (It’s still not polished, and I’m not sure what I’ll do with it after the final edit, so I’m not posting it here.) Waterslides weren’t the only way OCD affected my life when I was a kid, and my brain eventually … Continue reading Isolation, OCD, and a Request
If you know me in “real” (scare quotes because what’s real, even, in this day and age?) life or read this blog, you almost certainly know that I’m a LEGO superfan. Those little plastic bricks aided me as I recovered from a brain injury; they’ve distracted me during long hospitalizations; they’ve rewired neurons fried from … Continue reading Yet Another LEGO Appreciation Post
I'm taking a few minutes from my Boxing Day to wish you a happy holiday week (if that's relevant to you). I hope that you're striking a balance between celebration and safety and that you're responsibly marking the season in a way that feels right to you. In other words, Merry Christmas! Or not. My … Continue reading This Christmas
De Morbo Sacro: Life and/with Epilepsy 