This morning my husband and I woke up early (well, early for a Sunday) and went downtown to the starting point for the inaugural Purple Walk for Epilepsy, which took place in conjunction with BuskerFest in support of Epilepsy Toronto. Before continuing, I'll say that Tristan Thompson, a famous NBA player, was there, and I was … Continue reading Purple Tears (of Gratitude)
My last post was a triumphant one, so I feel a little guilty cancelling that out by being a total downer, but, you know. Gotta keep it real. Life is, after all, keeping me on my toes. I was debating whether or not to write a separate entry about the dental trauma that I experienced last … Continue reading Broken Tooth and Shattered Dream: But Really, It Could’ve Been Worse
I was going to post this last Wednesday upon landing, but the airline lost my bag, and I temporarily lost the ability to think about anything but the fact that my beloved stuffed bear, Bear, was potentially gone forever or about the fact that the whole ordeal was really drawn-out and frustrating from start to … Continue reading Flashback … Sunday? (I Was on a Plane!)
Ready for some epilepsy real talk? Doesn't matter: the beauty of maintaining my own little corner of the internet is that I can write about (almost?) whatever I want, I'm in an honest mood, and you can stop reading and go listen to This American Life whenever you decide that visualizing me having a seizure on the … Continue reading Bathroom Seizures: Exactly What They Sound Like
Just a twenty-minute post (twenty minutes to write, not to read—I won't waste such a large portion of your awake-time on this) to let you know that my life isn't all chronic-illness-and-PhD fun. Nope: sometimes my husband and I go on random dates. Random in both the relatively unplanned sense and the appropriately bizarre one. … Continue reading Date Night
A few days ago, I read a great article in The Atlantic with the delightfully self-explanatory title "Living with Invisible Illness." This piece of writing has popped into my poor 'ol maybe-concussed head several times since. (Yep, maybe-concussed, but I don't really feel like getting into the particulars of the maybe-concussion. What a life, huh?? What … Continue reading Why I Sat in the Laundromat a Few Afternoons Ago Reflecting on the Nature of “Invisible” Illness As I Experience It
One of the words that I apply to myself most liberally is "lazy." (As I wrote that sentence, I began fantasizing about supermarket cake spread thickly with vanilla icing—the fact that I so easily and quickly equate myself with cheap dessert covered with grainy frosting, incidentally my favourite variety, perhaps bears further analysis. The comparison … Continue reading Grainy Icing on the Proverbial Grocery-Store Cake: Reflections on Laziness (Part I)
Today is my husband's and my four-year wedding anniversary, which started with a treatment that required me (read: us) to arrive at the hospital by 6:45 a.m. for a brain-traumatizing procedure. (Private-message me for deets, if you’re interested. I will also use this procedure as an excuse for typos/poor writing/etc. etc., so I apologize in … Continue reading Four Years
Two weeks ago, four days after I had been discharged the first time, I was readmitted to the hospital. The reasons for this return are complicated, meaning that I don't feel like getting into them right now, but suffice it to say that my reentry into the world of twenty-four-seven medical supervision was swift, unexpected, … Continue reading Readmission/Return
Over six weeks later, and I've finally been discharged from the hospital. Over six weeks: that's a month and a half of my life. And the saga's not over yet. Not really. Health problems of this nature aren't (surprise surprise) miraculously resolved when you're handed your discharge papers and head home. I've got a ways … Continue reading Looking Back, Moving Forward
De Morbo Sacro: Life and/with Epilepsy 