Well, I did it! All went pretty much according to plan, and I now have a VNS implanted in my chest. I'd like to claim that I've roared my way into cyborg status, but so far I've been in more of a whimpering state. Roaring will have to be a longer-term goal. I meant to … Continue reading I Am Now a Cyborg: Hear Me Whimper
The time's upon us: it's Halloween, yes, but it's also the day a VNS device will be surgically implanted in my chest. My husband and I are, in fact, at the hospital waiting for my operating time. Though I was a nervous wreck yesterday and over the weekend, I'm now (relatively) calm about the whole … Continue reading It’s a Great Day to Have a Device Implanted in My Chest! (Oh, and Happy Halloween, Everyone.)
Over the course of two days, it's abruptly turned from sundress-and-Birkenstocks weather to sweater-and-sneakers season. The change hasn't been entirely unwelcome; there's only so much late-September sweating I can do before agonizing over global warming starts to interfere with my enjoyment of the sunshine. It has, however, resulted in some interesting-to-me (almost definitely boring-to-you) reflections. … Continue reading It’s the End of September, and I’m Not Freaking Out
I'm a little late—what else is new?—with this, but I thought I'd write a bit about my latest visit to the neuro ward, a.k.a. my home away from home this year. First: I've been out for a while now, so yay! In fact, with the medication adjustment done in hospital, I'm super stable. In fact, … Continue reading Belated Update: Another Visit to 5B (Yeah, I Know)
I recently mentioned in a post on Facebook, I think it was, that a nurse in the neurology ward suggested that assembling LEGO sets of around 500 pieces would be useful in my recovery process since I was (and still am, though to a lesser extent) having trouble with fine motor skills. This is when … Continue reading The LEGO Fairy
Last Friday—yes, I'm a little behind on my posts—a physiotherapist came to our apartment to help me learn how to be less terrified of going down the stairs and do simple exercises in order to become a little less deconditioned after two months of doing almost nothing but chillaxin' (i.e., lying in a hospital bed). … Continue reading One Step at a Time (Really): First Visit from the Physiotherapist
First, I'm having a lot of trouble writing these days—locating words, typing, using simple grammar without immense effort, etc. (my personal hell, if you know me well enough), so please, please, be gentle with me if you find mistakes in this post: I've decided that it's fair to blame it on the seven brain medications … Continue reading And the Saga Continues
I write this in a moment of clarity, which, these days, are few and far between. But they exist, and for that, I am grateful. (Please notice and appreciate my attempt to practice positive thinking. The current arguably lame, but very affective, thing I repeat to myself is "go with the flow." So yeah. But … Continue reading A Quick Update That I’d Rather Not Have to Make
Yesterday was momentous in that it marked the first day post-surgeries that I was allowed to wash my hair. It was glorious. It was also strange. Until this past fall, my hair stretched halfway to my waist. Then my surgery was initially scheduled, and I got a series of cuts to prepare myself for the … Continue reading Washing My (Stubbly, Pathetic) Hair: When Mundane Tasks Become Your New Excitement
This has been a pretty intense week, to put it mildly. From sizeable craniotomy to grid placement to brain swelling to black eye swollen shut to intense pain and nausea necessitating heavy-duty meds to gradual and ongoing recovery, it’s certainly been one to remember. I’m in the EMU now, with the grids implanted. I continue … Continue reading Surgery Update, Week 1
De Morbo Sacro: Life and/with Epilepsy 