A version of this post sat in my drafts folder for many weeks. I kept leaving it there because I’ve been spending most of my free time in recent days either exploring my surroundings or engaged in my newest hobby (and also because I've been procrastinating, but that goes without saying). Since this entry is … Continue reading Machine Sew, Arm Pedal
My husband and I were away this past week, this time even further from home and for a little longer than we were gone our last trip. Three nights, lots of excitement, lots of doing the right amount of nothing. Wandering, exploring, being spontaneous. It was glorious. We booked a hotel and a car a … Continue reading On the Road Again, Again
Here's another morsel of a post to tide you over until I get my act together and finish one of the many longer entries currently languishing in my drafts folder. I keep telling myself that today's the day I'll produce a mini-masterpiece for this blog. Today, however, is not that day, so I present you … Continue reading Not Horsing Around
Last Wednesday was one for the books. It was on that monumental day that my occupational therapist, a sales rep, and a technician, the latter two from a medical-equipment supplier, came in the late morning so that I could trial a power chair and so that my OT could evaluate whether or not I'm a … Continue reading Joystick
I’m in the middle of writing a few longer posts, one of which I planned to finish today. It’ll have to wait a day or two, though, because life got—is getting—in the way. “Got in the way” in the little-used positive sense of that phrase. In recent weeks/months, life hasn't been an impediment to my … Continue reading Rambling in(to) the Woods
Last weekend brought another fistful of firsts. And a plateful of cabbage rolls, but I'll get to that. After our recentish night at a downtown hotel, my husband and I immediately started plotting another trip. For a number of reasons—laziness, abundance of choice, life being busy and full, etc.—it took us a while to get … Continue reading On the Road Again
I'm not going to pretend that I didn't go into the neurology appointment I had last Thursday with a clear goal and unrealistically high hopes that I'd achieve it. Given the level of anticipatory anxiety I usually experience before most encounters with medical professionals (no matter how kind and understanding said professional may be), and … Continue reading Powering Up
I meant to write this post a month or so ago but never got around to it. This morning, though, a conversation with a friend reminded me that this, of all things, is something to document in a semi-public forum. Here I am, then, documenting it semi-publicly, basking in my own glory (what else is … Continue reading Personal Support
My husband and I have been putting real effort into transforming our apartment into a space that reflects where we are in our life rather than where we were when we moved in. Last March, we had no choice but to make design and other decisions based first and foremost on my accessibility and health … Continue reading Making Space
I don't have much to say about the solar eclipse because it's the first time I've experienced anything like it. I had a reaction I didn't quite anticipate. Though I don't live in the path of totality and wasn't dedicated enough to travel to see it in its full glory, it was truly a sight … Continue reading (Near-)Total Eclipse
De Morbo Sacro: Life and/with Epilepsy 