Powering Up

I'm not going to pretend that I didn't go into the neurology appointment I had last Thursday with a clear goal and unrealistically high hopes that I'd achieve it. Given the level of anticipatory anxiety I usually experience before most encounters with medical professionals (no matter how kind and understanding said professional may be), and … Continue reading Powering Up →

Personal Support

I meant to write this post a month or so ago but never got around to it. This morning, though, a conversation with a friend reminded me that this, of all things, is something to document in a semi-public forum. Here I am, then, documenting it semi-publicly, basking in my own glory (what else is … Continue reading Personal Support →

Making Space

My husband and I have been putting real effort into transforming our apartment into a space that reflects where we are in our life rather than where we were when we moved in. Last March, we had no choice but to make design and other decisions based first and foremost on my accessibility and health … Continue reading Making Space →

People vs Pigeons

I used to think that pigeons were kind of adorable. My husband and I had a funny-only-to-us habit of calling them by name (always the moniker "Signor Piccione"). Not understanding how you could possibly have a beef against what's basically a dove, I reacted with in-my-head derision when people complained about them. A symbol of … Continue reading People vs Pigeons →

And a Door Opens

It's been another week full of highs. For reasons of expediency, I'll limit myself to documenting just one of them today. Rest assured, though, that you can expect more gloating in future entries. I'm currently in the lobby of my building sipping a coffee and breaking up my afternoon with a welcome change of scenery. … Continue reading And a Door Opens →

Hold On

I had one of those productive-but-frustrating appointments on Thursday morning, the kind that leaves me bristling with resentment in the moment but settled into a better, more balanced place a mere thirty minutes or so later. As I won't stop internet (and real-life) shouting in recent weeks, I’m in the middle of a huge developmental … Continue reading Hold On →

Away from Home

For the good part of a year, I found it hard to believe that I was home. Funny, then, that I'm going to celebrate the end of that year by sleeping in a bed not my own. The difference, of course, is that for the first time in what feels like forever, a night away … Continue reading Away from Home →

(Win)hair

Now that I’ve started taking showers in the shower rather than supine in bed and am thus able to wash my hair the old-fashioned way, I've become, for perhaps the first time in my life, open to the possibility that expensive shampoo, conditioner, and styling goops might make a difference. To clarify, I in no … Continue reading (Win)hair →

It’s Been (Quite) a Year

I've been awaiting this day for months with a curious mix of over-the-top excitement and nervous anticipation, proud and pumped but not wanting to jinx myself. Exactly a year ago, I was discharged from the hospital. That's right: today marks a year since I've been an inpatient. A year without an admission. A year without … Continue reading It’s Been (Quite) a Year →

The Proverbial Floodgates

I'm not sure my husband is particularly happy about the consequences that my latest accomplishment (and, in some ways, the greatest one besides the obvious stuff such as, you know, surviving) will have on his ability to enjoy the night without getting soaked in second-hand water. Yesterday evening, I showered in our shower for the … Continue reading The Proverbial Floodgates →