New visitors policies for this hospital system were recently announced. I was told yesterday that under the updated guidelines, my husband can now be classified as an "Essential Care Partner" and visit me twice a week for two hours at a go. My nurse was fantastic about getting the requisite paperwork filled out so that … Continue reading Ninth Wedding Anniversary: A PDA (Sorry, Husband)
Look at me, blogging more regularly! #bored The bad news is, as the title of this post makes abundantly clear, that this one's a real downer. Sorry. I'll balance that out a little with a picture of the bulletin board in my room. In case you're wondering, the duck's name is Marvin, and he works … Continue reading A Bad Day
If you know me irl (internet slang!!!) or are a regular reader of this blog, you're probably aware that I'm someone who places great value on controlling every aspect of my life I possibly can. My ability to stick to rigid, self-imposed rules is, as I've learned, a power that I can use for good … Continue reading Seizures, Supplements, and Sweatpants (Control!)
Yesterday I was in the same room as my husband for the second time in three months. In a happy coincidence that I hadn't, to be perfectly honest, actually considered when I asked for another exception to the hospital's current no-visitors policy and was given permission for him to come, it was both my husband's … Continue reading Birth-Yay! (Happy Birthday, Husband)
I'm continuing to make lots of progress and am super grateful and all that, etc. etc. However, as you've probably gathered from the extensive complaining in which I've indulged in previous posts, it isn't all sunshine, unicorns, and high-energy ketogenic supplemental beverages. Although there've been many challenges, the one that's made me wallow the most … Continue reading Ask and Ye Shall Sometimes Receive
Looking out my window and at the weather app on my phone tells me that it's no longer winter, which is a little hard for me to process since this hospital stay began in early December and the last time I was outside was in February. Lemme tell you: I'm not a fan of everyone … Continue reading It’s Nice Out, and I Hate It
It's a pretty normal Saturday in hospital land. I've eaten many things and drunk many Ketocals. I've socialized a little (something I wasn't doing much of when my postictal psychosis was at its worst) and considered building a new LEGO set. I've had a seizure. My seizure frequency means that I wake up knowing that … Continue reading A Glimmer of Hope for “a Challenging Case of Very Intractable Epileptic Seizures”
I was supposed to travel to Ottawa this weekend to attend an event that I'd been looking forward to for months. While acknowledging that there's basically no chance that you don't see where I'm headed with this, I'll nonetheless take the liberty of allowing myself a dramatic, bold-and-italics-style reveal. No Ottawa for me. I'll admit … Continue reading Not in Ottawa/Obnoxiously Festive
Yes, I mean news news, not news of the personal-and-complainy variety. Yesterday I ran across this article about five-year-old Emma, who's the first patient in Canada to have the most recently released VNS model implanted. When she was seven months old, Emma was diagnosed with the seizure disorder infantile spasms (IS); her parents are hosting an … Continue reading Some Positive VNS News in the News
It was my birthday last Saturday. I'm another year older! (Yay?) Yes, I've acquired some additional signs of my impending old age over these past twelve months. I've also, however, gained some real wisdom. (Yay for real this time.) It's been quite the year. I won't claim not to be the person I was in … Continue reading Another Year Wiser(ish), Very Thankful
