Eight Weeks, and All I Have to Show for Them Is a Mostly Unedited Blog Post (and lots of empty Ensure Plus bottles and many seizures and significant progress)

For several weeks, I kept going back to the same now-musty post in my drafts folder, making minor changes, staring at what I’d written, and then inevitably becoming overwhelmed and distracted by other tasks, 9.5 times out of 10 a meal or a bottle of Ensure Plus. It was time to acknowledge that the longer, … Continue reading Eight Weeks, and All I Have to Show for Them Is a Mostly Unedited Blog Post (and lots of empty Ensure Plus bottles and many seizures and significant progress) →

Some Positive VNS News in the News

Yes, I mean news news, not news of the personal-and-complainy variety. Yesterday I ran across this article about five-year-old Emma, who's the first patient in Canada to have the most recently released VNS model implanted. When she was seven months old, Emma was diagnosed with the seizure disorder infantile spasms (IS); her parents are hosting an … Continue reading Some Positive VNS News in the News →

Another Year Wiser(ish), Very Thankful

It was my birthday last Saturday. I'm another year older! (Yay?) Yes, I've acquired some additional signs of my impending old age over these past twelve months. I've also, however, gained some real wisdom. (Yay for real this time.) It's been quite the year. I won't claim not to be the person I was in … Continue reading Another Year Wiser(ish), Very Thankful →

Epilepsy in the News: GO Transit, Questions of (in)Accessibility, and an Angry Blogger

This video and article about a young girl (Pepper) with epilepsy whose parents were told that she couldn't ride an accessible GO Transit car popped up in my social media feeds a few days ago. As you might imagine, it made me so, so angry. In the interests of encouraging you to click this link so … Continue reading Epilepsy in the News: GO Transit, Questions of (in)Accessibility, and an Angry Blogger →

A Short, Self-Congratulatory, and Poorly Edited Post (I Went on a Trip and Didn’t Die!)

As I write this, I'm on my way home from the vacation in British Columbia that I had to reschedule last month. As I actually post this, I've been back in Toronto for several days. This means that I made it to my departure date without needing to reschedule for a second time; made it to … Continue reading A Short, Self-Congratulatory, and Poorly Edited Post (I Went on a Trip and Didn’t Die!) →

Some Frozen Treats I’ve Eaten This Summer, Most of Which Were Delicious

In my last post, I promised that the next one would be about ice cream. Since I’m a woman of my word, here are ten paragraphs about ice cream. Count 'em. I began writing this post as I greet each new day: by making a list. Since along with being a woman of my word … Continue reading Some Frozen Treats I’ve Eaten This Summer, Most of Which Were Delicious →

July in Two Words (So What?)

On this first day of August, I've been looking back over the last month and realizing that a major part of my doing-my-best-to-shrug-off-all-the-stuff-I-feel-powerless-about-and-thus-resent strategy in July was to repeat a simple phrase to myself, usually, but not always (being the awkward person I am), in my head. I've grown to appreciate the power of these … Continue reading July in Two Words (So What?) →