A Glimmer of Hope for “a Challenging Case of Very Intractable Epileptic Seizures”

It's a pretty normal Saturday in hospital land. I've eaten many things and drunk many Ketocals. I've socialized a little (something I wasn't doing much of when my postictal psychosis was at its worst) and considered building a new LEGO set. I've had a seizure. My seizure frequency means that I wake up knowing that … Continue reading A Glimmer of Hope for “a Challenging Case of Very Intractable Epileptic Seizures”

A COVID-19 Post to Add to the Millions in Your Inbox (Please Read!)

As Canada locks down to prevent the spread of COVID-19, Toronto—the city in which I live—has taken bold, necessary steps to “flatten the curve.” Elementary and secondary schools are closed. Public libraries are closed. Most retail outlets are closed. Universities have transitioned to online learning. Lots of other stuff has happened in the gap between … Continue reading A COVID-19 Post to Add to the Millions in Your Inbox (Please Read!)

Eight Weeks, and All I Have to Show for Them Is a Mostly Unedited Blog Post (and lots of empty Ensure Plus bottles and many seizures and significant progress)

For several weeks, I kept going back to the same now-musty post in my drafts folder, making minor changes, staring at what I’d written, and then inevitably becoming overwhelmed and distracted by other tasks, 9.5 times out of 10 a meal or a bottle of Ensure Plus. It was time to acknowledge that the longer, … Continue reading Eight Weeks, and All I Have to Show for Them Is a Mostly Unedited Blog Post (and lots of empty Ensure Plus bottles and many seizures and significant progress)

Epilepsy in the News: GO Transit, Questions of (in)Accessibility, and an Angry Blogger

This video and article about a young girl (Pepper) with epilepsy whose parents were told that she couldn't ride an accessible GO Transit car popped up in my social media feeds a few days ago. As you might imagine, it made me so, so angry. In the interests of encouraging you to click this link so … Continue reading Epilepsy in the News: GO Transit, Questions of (in)Accessibility, and an Angry Blogger

A Short, Self-Congratulatory, and Poorly Edited Post (I Went on a Trip and Didn’t Die!)

As I write this, I'm on my way home from the vacation in British Columbia that I had to reschedule last month. As I actually post this, I've been back in Toronto for several days. This means that I made it to my departure date without needing to reschedule for a second time; made it to … Continue reading A Short, Self-Congratulatory, and Poorly Edited Post (I Went on a Trip and Didn’t Die!)

July in Two Words (So What?)

On this first day of August, I've been looking back over the last month and realizing that a major part of my doing-my-best-to-shrug-off-all-the-stuff-I-feel-powerless-about-and-thus-resent strategy in July was to repeat a simple phrase to myself, usually, but not always (being the awkward person I am), in my head. I've grown to appreciate the power of these … Continue reading July in Two Words (So What?)