Being in an epilepsy monitoring unit is, it seems, the best anticonvulsant I've tried yet. At home, I have at least a few seizures a month, and that’s while on my medications. Here, I just finished tapering off Vimpat and still haven’t had a single “event.” Gotta get the seizure train rollin’ if I want … Continue reading Best Anticonvulsant Ever
There was a new epileptologist doctor on duty today, and she suggested that I try sleep deprivation to get the seizure train rolling. This means staying up until four in the morning, sleeping until nine, then making it through the day without naps—which, to be honest, is an only slightly shifted and shortened version of … Continue reading Sleep Deprivation for a Cause
Some of the young adults that I've been collaborating with since the epilepsy summit that I attended in DC in July 2014 met in Toronto this past weekend to discuss our progress, plan upcoming projects, and work on our current one. It was an engaging, intense, fulfilling few days, and for the first time in … Continue reading Epilepsy and the Importance of Community
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This morning my husband and I woke up early (well, early for a Sunday) and went downtown to the starting point for the inaugural Purple Walk for Epilepsy, which took place in conjunction with BuskerFest in support of Epilepsy Toronto. Before continuing, I'll say that Tristan Thompson, a famous NBA player, was there, and I was … Continue reading Purple Tears (of Gratitude)
My last post was a triumphant one, so I feel a little guilty cancelling that out by being a total downer, but, you know. Gotta keep it real. Life is, after all, keeping me on my toes. I was debating whether or not to write a separate entry about the dental trauma that I experienced last … Continue reading Broken Tooth and Shattered Dream: But Really, It Could’ve Been Worse
I was going to post this last Wednesday upon landing, but the airline lost my bag, and I temporarily lost the ability to think about anything but the fact that my beloved stuffed bear, Bear, was potentially gone forever or about the fact that the whole ordeal was really drawn-out and frustrating from start to … Continue reading Flashback … Sunday? (I Was on a Plane!)
Ready for some epilepsy real talk? Doesn't matter: the beauty of maintaining my own little corner of the internet is that I can write about (almost?) whatever I want, I'm in an honest mood, and you can stop reading and go listen to This American Life whenever you decide that visualizing me having a seizure on the … Continue reading Bathroom Seizures: Exactly What They Sound Like
Just a twenty-minute post (twenty minutes to write, not to read—I won't waste such a large portion of your awake-time on this) to let you know that my life isn't all chronic-illness-and-PhD fun. Nope: sometimes my husband and I go on random dates. Random in both the relatively unplanned sense and the appropriately bizarre one. … Continue reading Date Night
A few days ago, I read a great article in The Atlantic with the delightfully self-explanatory title "Living with Invisible Illness." This piece of writing has popped into my poor 'ol maybe-concussed head several times since. (Yep, maybe-concussed, but I don't really feel like getting into the particulars of the maybe-concussion. What a life, huh?? What … Continue reading Why I Sat in the Laundromat a Few Afternoons Ago Reflecting on the Nature of “Invisible” Illness As I Experience It
De Morbo Sacro: Life and/with Epilepsy 