Good things are happening. First and, probably, foremost, I’ve started taking steps (using an “air walker” and with the assistance of two physiotherapists, but still). My first attempt I managed six; now I’m up to around twenty-five. It’s absolutely and unbelievably exhilarating to “walk.” It’s also very, very exhausting. Second, I passed my swallow test! … Continue reading (Literal) Steps Forward
I’m lucky to be writing this post today. I’ve been in the hospital for four-ish months now, the first two of those in the ICU. Initially, I wasn’t expected to live. I had gone into septic shock due to multiple infections, and my heart and kidneys were failing. The doctors called a “code blue.” I … Continue reading Lots of Change, Some of It Good
It was on a particularly challenging day last week that I received a message with an offer so generous it made me want to cry. (OK, fine; some tears were shed. I’m becoming an increasingly emotional beast with each passing year.) It was from my LEGO Fairy, who wanted to know if she could purchase … Continue reading Return of the LEGO Fairy
My husband and I each got a third dose of the Pfizer vaccine yesterday afternoon. So many (unexpected) emotions! Most of all, I’m grateful, relieved, and more optimistic than I was about my ability to hunker down and survive—emotionally and otherwise—whatever this next COVID curveball throws at us. In a word, I’m boosted. I don’t … Continue reading Boosted!
Although I'd been contemplating breaking my blog silence for weeks (how many posts have I started with some variation of this?), it took a moment this morning in which the more rational part of my brain reassured me that I was, as is my way, grossly overcomplicating the situation for me to go ahead and … Continue reading A Blog Post That Has Nothing to Do with Christmas Stickers
My husband and I both got our second Pfizer dose last Thursday. We’d been scheduled to receive it at the end of July, so it was really, really nice to be given the opportunity to change our appointment date by such a significant chunk of time. 💉💪🏻✔️ 🎉 It’s been interesting to observe that relief … Continue reading Double Jabbed!
It’s been just over a week since I came home, and I’m happy to report that I’m still here and that it’s still pretty much the best (and that I took down the stray Christmas decorations that my husband had left up since last year). Though I was feeling pretty darn good about leaving the … Continue reading Pretty Much the Best
New visitors policies for this hospital system were recently announced. I was told yesterday that under the updated guidelines, my husband can now be classified as an "Essential Care Partner" and visit me twice a week for two hours at a go. My nurse was fantastic about getting the requisite paperwork filled out so that … Continue reading Ninth Wedding Anniversary: A PDA (Sorry, Husband)
If you know me irl (internet slang!!!) or are a regular reader of this blog, you're probably aware that I'm someone who places great value on controlling every aspect of my life I possibly can. My ability to stick to rigid, self-imposed rules is, as I've learned, a power that I can use for good … Continue reading Seizures, Supplements, and Sweatpants (Control!)
It was my birthday last Saturday. I'm another year older! (Yay?) Yes, I've acquired some additional signs of my impending old age over these past twelve months. I've also, however, gained some real wisdom. (Yay for real this time.) It's been quite the year. I won't claim not to be the person I was in … Continue reading Another Year Wiser(ish), Very Thankful
De Morbo Sacro: Life and/with Epilepsy 