Remember the post—I think it's this one—in which I scoffed at how my epileptologist had warned me that I'd feel a "big jolt" when he programmed my VNS and then the sensation ended up being more of a big ’ol nothing, to the point that I was concerned that there was something wrong with my … Continue reading And Behold, a Jolt!
I realize that since I live in Ontario, I have no business being surprised by super-cold temps in January. The last week or thereabouts, though, has been cold-weather-warning cold, let's-not-leave-the-house cold, three-layers-and-still-not-comfortable cold. So yeah, it's been incredibly cold, in case that wasn't clear from the previous paragraph. This quasi-arctic weather—and I say this as … Continue reading It’s Really, Really Cold, and Seizure Me Doesn’t Seem to Know or Care
Well, it's been an interesting year. I knew that 2017 wouldn't be devoid of challenges: it started, after all, with scheduled neurosurgery that had been looming over me for much of 2016. I didn't anticipate, though—I couldn't have anticipated—how many twists and turns I'd navigate from January (intracranial grids implanted, almost the entire month spent … Continue reading 2017 in Review: Looking Back, Looking Forward, Looking at the VNS Scar on My Neck Every Time I Look in the Mirror
I started playing the piano when I was a little girl and kept at it throughout my childhood. True to my personality, I (usually) took my lessons seriously, and I got better and better, as is typically the case when one practises—turns out that all those motivational posters are right. By the time I began … Continue reading Keys
This has been a challenging week on several fronts. I'm only going to elaborate on the one that's directly health-related, though, since it's affecting my ability to process what else has happened and since I like to maintain a sliver of separation between my personal life and my blog existence, believe it or not. Last … Continue reading ’Tis the Season! (Christmas and Concussions)
Since the last time I blogged, I've made steady progress in the direction of adjusting to life with a VNS device implanted, cyborg-style, in my chest: I went to my family doctor and found a better solution for my nausea. I've almost completely eliminated ongoing pain by managing it with a combination of ibuprofen and … Continue reading Vanessa
Well, I did it! All went pretty much according to plan, and I now have a VNS implanted in my chest. I'd like to claim that I've roared my way into cyborg status, but so far I've been in more of a whimpering state. Roaring will have to be a longer-term goal. I meant to … Continue reading I Am Now a Cyborg: Hear Me Whimper
The time's upon us: it's Halloween, yes, but it's also the day a VNS device will be surgically implanted in my chest. My husband and I are, in fact, at the hospital waiting for my operating time. Though I was a nervous wreck yesterday and over the weekend, I'm now (relatively) calm about the whole … Continue reading It’s a Great Day to Have a Device Implanted in My Chest! (Oh, and Happy Halloween, Everyone.)
I got home from a trip with my father last Tuesday afternoon. Our vacation was lovely: a perfect mix of relaxing, spending time with family, and being distracted from my upcoming surgery. Though I had a few seizures, we had a safety plan in place, and it worked exactly as it was supposed to. The … Continue reading Post-Vacation, Pre-Op Business/Busyness
As the self-explanatory title of this blog post makes clear, it's Thanksgiving weekend here in Canada. Though 2017 has been difficult in ways that are sometimes hard for me to articulate, my Year of the Disobedient Brain has, in many respects, allowed me to better recognize my privilege and focus on the things for which … Continue reading Happy (Canadian) Thanksgiving!
De Morbo Sacro: Life and/with Epilepsy 