The fact that I’m home, in a new home I’d never stepped foot in (rolled into?) before last Sunday, is almost surreal. Sleeping in the same room as my husband? Eating at the same table? What is this? A beautiful, deeply satisfying, work in progress. As you likely anticipated, there’s a catch, for with the … Continue reading Home New Home
It’s been just over a week since I came home, and I’m happy to report that I’m still here and that it’s still pretty much the best (and that I took down the stray Christmas decorations that my husband had left up since last year). Though I was feeling pretty darn good about leaving the … Continue reading Pretty Much the Best
Today something I’d started to think would never happen at long last did (happen, that is). Call it a September miracle, call it the cumulation of over nine months of intensive medical treatment, call it what you want. All that matters is that I’m home. Not that I was excited to leave or anything. I’ve … Continue reading And Now, Home(!)
Well, readers, this has been quite the week. Let me start with the positive: I’m starting to feel significantly better, and I’m not dead. (I guess those two things are connected.) Oh, and I don’t remember most of Monday and Tuesday, which is probably good. Yep, I’m being pretty dramatic. I feel like I deserve … Continue reading A Terrible Week
If you know me irl (internet slang!!!) or are a regular reader of this blog, you're probably aware that I'm someone who places great value on controlling every aspect of my life I possibly can. My ability to stick to rigid, self-imposed rules is, as I've learned, a power that I can use for good … Continue reading Seizures, Supplements, and Sweatpants (Control!)
Yesterday I was in the same room as my husband for the second time in three months. In a happy coincidence that I hadn't, to be perfectly honest, actually considered when I asked for another exception to the hospital's current no-visitors policy and was given permission for him to come, it was both my husband's … Continue reading Birth-Yay! (Happy Birthday, Husband)
I'm continuing to make lots of progress and am super grateful and all that, etc. etc. However, as you've probably gathered from the extensive complaining in which I've indulged in previous posts, it isn't all sunshine, unicorns, and high-energy ketogenic supplemental beverages. Although there've been many challenges, the one that's made me wallow the most … Continue reading Ask and Ye Shall Sometimes Receive
As Canada locks down to prevent the spread of COVID-19, Toronto—the city in which I live—has taken bold, necessary steps to “flatten the curve.” Elementary and secondary schools are closed. Public libraries are closed. Most retail outlets are closed. Universities have transitioned to online learning. Lots of other stuff has happened in the gap between … Continue reading A COVID-19 Post to Add to the Millions in Your Inbox (Please Read!)
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I was discharged from the neuro ward last Monday evening (appropriately, I guess, the date of my release coincided with Purple Day [for epilepsy awareness]). Except for an appointment a few days ago and a ten-minute walk yesterday afternoon, I've been more or less chilling ever since. I hate chilling. Although I'm super happy to … Continue reading I’m Home, Getting Better, and Really Cranky
De Morbo Sacro: Life and/with Epilepsy 