I’m working on a normal-length post about something more important than what I’m about to document, but since an ... inspiring(?) event has transpired in the meantime, I find myself spontaneously moved to write. I mean, how could I not inform you that a Ketocal explosion recently took place in my hospital room? “Explosion” is, … Continue reading This Post Is about a (Minor) Ketocal Explosion
A great/possibly the best thing about being confined to a hospital unit (for seven months, as of yesterday 😐) is feeling justified in wearing whatever the h-e-double-hockey-sticks I so desire. As it turns out, what I so desire, at least 90% of the time, are sweatpants paired with a novelty T-shirt. I’m well aware that … Continue reading Novelty T-Shirts and Why I Love Them
Look at me, blogging more regularly! #bored The bad news is, as the title of this post makes abundantly clear, that this one's a real downer. Sorry. I'll balance that out a little with a picture of the bulletin board in my room. In case you're wondering, the duck's name is Marvin, and he works … Continue reading A Bad Day
Yesterday I was in the same room as my husband for the second time in three months. In a happy coincidence that I hadn't, to be perfectly honest, actually considered when I asked for another exception to the hospital's current no-visitors policy and was given permission for him to come, it was both my husband's … Continue reading Birth-Yay! (Happy Birthday, Husband)
While eating the second avocado of my breakfast this morning, I realized that today is the six-month mark of this hospitalization. Six months. That's ... a significant amount of time. Seriously. So much has changed outside these walls since I got here: seasons have passed, a pandemic has begun, major change is taking place in … Continue reading Six Months, and All I Have to Show for Them Is Significant Progress and a Cheesy Paint by Numbers
Looking out my window and at the weather app on my phone tells me that it's no longer winter, which is a little hard for me to process since this hospital stay began in early December and the last time I was outside was in February. Lemme tell you: I'm not a fan of everyone … Continue reading It’s Nice Out, and I Hate It
I've now entered a new stage of my ketogenic-diet-for-seizure-control experiment. More accurately, since this is a joint effort in which he cooks the food and I eat it, my husband and I have made the transition to a stricter and, with any luck, more effective phase of (my) ketoing for (my) medical purposes. It was … Continue reading Cooperative Ketoing
It's a pretty normal Saturday in hospital land. I've eaten many things and drunk many Ketocals. I've socialized a little (something I wasn't doing much of when my postictal psychosis was at its worst) and considered building a new LEGO set. I've had a seizure. My seizure frequency means that I wake up knowing that … Continue reading A Glimmer of Hope for “a Challenging Case of Very Intractable Epileptic Seizures”
It’s me! It’s been (practically) forever! Don’t get too excited: I’m just dropping in to wish you a happy end to 2018 and beginning to 2019. Since I keep meaning to compose a long catch-up/excuse post and then collapsing under the pressure of having so much to catch up on and not knowing how much … Continue reading It’s Almost 2019! Time for a Disjointed Post.
I'm currently prescribed five anticonvulsants. Five. Some are better than others, but each is its own special flower/beast, in terms of side-effect profile. That said, I'm grateful that I've found a combination of medications that's kept me out of the hospital since the summer.* Among the drugs currently inhabiting my blister pack is phenytoin (Dilantin), … Continue reading Dilantin, ER, Vomit: A(nother) Scattered Blog Post
