Cooperative Ketoing

I've now entered a new stage of my ketogenic-diet-for-seizure-control experiment. More accurately, since this is a joint effort in which he cooks the food and I eat it, my husband and I have made the transition to a stricter and, with any luck, more effective phase of (my) ketoing for (my) medical purposes. It was … Continue reading Cooperative Ketoing

A Glimmer of Hope for “a Challenging Case of Very Intractable Epileptic Seizures”

It's a pretty normal Saturday in hospital land. I've eaten many things and drunk many Ketocals. I've socialized a little (something I wasn't doing much of when my postictal psychosis was at its worst) and considered building a new LEGO set. I've had a seizure. My seizure frequency means that I wake up knowing that … Continue reading A Glimmer of Hope for “a Challenging Case of Very Intractable Epileptic Seizures”

Dilantin, ER, Vomit: A(nother) Scattered Blog Post

I'm currently prescribed five anticonvulsants. Five. Some are better than others, but each is its own special flower/beast, in terms of side-effect profile. That said, I'm grateful that I've found a combination of medications that's kept me out of the hospital since the summer.* Among the drugs currently inhabiting my blister pack is phenytoin (Dilantin), … Continue reading Dilantin, ER, Vomit: A(nother) Scattered Blog Post

Same-Day Appointment with My Epileptologist: Success/the Beginning of a Multi-Month Pregabalin Breakup

I woke up yesterday morning to two missed calls and a voicemail from an "unknown" number. I've been doing this chronic-illness thing long enough to know that 95% of the time, if you're a heavy user of the health-care system, an unknown caller means a medical office, usually one in a hospital. Sure enough, it … Continue reading Same-Day Appointment with My Epileptologist: Success/the Beginning of a Multi-Month Pregabalin Breakup