That’s right, friends. In approximately an hour and after nine months, give or take, I’ll be discharged. I’d be lying if I claimed that I’m not a little nervous. Change, especially change this big, is hard. As I wrote about in much greater detail in my last post, there are major ways in which my … Continue reading Happy Home Day!
I’ve once again let enough time elapse between posts that anxiety about how much has happened—more material for those blog entries that I always promise but never quite get around to writing—has made producing anything at all feel too overwhelming. Today, though, I somehow worked up the courage to start with a short update and … Continue reading Big Changes in the Works
Just over a week before Christmas, I had a seizure and needed to be brought to an acute-care hospital. The next day, still in the ICU, I had another seizure, tried to get out of bed, fell, and broke my hip, an injury requiring surgery. A few days later, I went into status epilepticus again … Continue reading Christmas
So much has happened since I last wrote that I got too overwhelmed to write anything at all. And then what would likely be immediately obvious to most people popped into my head: it’s possible to update in bits and pieces rather than all at once. So here’s a bit. Or a piece. (You decide.) … Continue reading A Bit or a Piece
It’s been a hectic but very positive week. Real progress is being made, readers! I traditionally haven’t done well with transitions. As I’m sure I’ve written a bazillion times before, my preference is usually to remain in an uncomfortable situation rather than face the risk presented by change. (Which happens to be one of my … Continue reading Transition
Good things are happening. First and, probably, foremost, I’ve started taking steps (using an “air walker” and with the assistance of two physiotherapists, but still). My first attempt I managed six; now I’m up to around twenty-five. It’s absolutely and unbelievably exhilarating to “walk.” It’s also very, very exhausting. Second, I passed my swallow test! … Continue reading (Literal) Steps Forward
I’m lucky to be writing this post today. I’ve been in the hospital for four-ish months now, the first two of those in the ICU. Initially, I wasn’t expected to live. I had gone into septic shock due to multiple infections, and my heart and kidneys were failing. The doctors called a “code blue.” I … Continue reading Lots of Change, Some of It Good
I guess I jinxed myself with my last post about getting out of my neighbourhood—or maybe the problem was that getting out of my neighbourhood was way too exciting for my brain to handle—because two weeks ago, I made another journey to the hospital. This one unplanned, in an ambulance, and while actively seizing. It’d … Continue reading Hello, ER. (I Hate You, Phenytoin.)
It’s been just over a week since I came home, and I’m happy to report that I’m still here and that it’s still pretty much the best (and that I took down the stray Christmas decorations that my husband had left up since last year). Though I was feeling pretty darn good about leaving the … Continue reading Pretty Much the Best
As I’m sure you’re aware, last Monday—my transfer day—has come and gone. I didn’t back out at the last minute; I was in near-constant freak-out mode; I experienced a weird ambulance ride with a nurse (one of my favourites), me on a stretcher because it’s policy even though I’m mobile and could’ve made the journey … Continue reading Oh Hey There, It’s Me in the Neuro Ward
De Morbo Sacro: Life and/with Epilepsy 