I've now entered a new stage of my ketogenic-diet-for-seizure-control experiment. More accurately, since this is a joint effort in which he cooks the food and I eat it, my husband and I have made the transition to a stricter and, with any luck, more effective phase of (my) ketoing for (my) medical purposes. It was … Continue reading Cooperative Ketoing
It's a pretty normal Saturday in hospital land. I've eaten many things and drunk many Ketocals. I've socialized a little (something I wasn't doing much of when my postictal psychosis was at its worst) and considered building a new LEGO set. I've had a seizure. My seizure frequency means that I wake up knowing that … Continue reading A Glimmer of Hope for “a Challenging Case of Very Intractable Epileptic Seizures”
It’s me! It’s been (practically) forever! Don’t get too excited: I’m just dropping in to wish you a happy end to 2018 and beginning to 2019. Since I keep meaning to compose a long catch-up/excuse post and then collapsing under the pressure of having so much to catch up on and not knowing how much … Continue reading It’s Almost 2019! Time for a Disjointed Post.
I'm currently prescribed five anticonvulsants. Five. Some are better than others, but each is its own special flower/beast, in terms of side-effect profile. That said, I'm grateful that I've found a combination of medications that's kept me out of the hospital since the summer.* Among the drugs currently inhabiting my blister pack is phenytoin (Dilantin), … Continue reading Dilantin, ER, Vomit: A(nother) Scattered Blog Post
I woke up yesterday morning to two missed calls and a voicemail from an "unknown" number. I've been doing this chronic-illness thing long enough to know that 95% of the time, if you're a heavy user of the health-care system, an unknown caller means a medical office, usually one in a hospital. Sure enough, it … Continue reading Same-Day Appointment with My Epileptologist: Success/the Beginning of a Multi-Month Pregabalin Breakup
Well, what was likely the inevitable happened: I landed myself back in hospital, in the same unit in which I spent most of the first two months of 2017. Let's hope that I’ve gotten it out of my system now. On Tuesday evening, I had a series of five tonic-clonic seizures at home in the … Continue reading Back to 5B
I'll start with a disclaimer: for obvious reasons, my memories of the event that's the topic of this post are kind of spotty, so I'm relying on witnesses (i.e., my husband) for much of what makes up the following. We're going to have to go ahead and assume that I wasn't being trolled when the … Continue reading Sunday Night in the ER