Though I'm a little late to the party (sorry, that was a groaner), I wanted to weigh in on an unlikely controversy that has many members of the epilepsy community angry. I'm angry, too. In August, Netflix released the film The After Party. I haven't watched it—I'll admit that I'm a little curious, but I know … Continue reading Representation Matters: Netflix, “The After Party,” and How to Hurt One Group in Order to Entertain Another
For complicated reasons that aren't the topic of this post—sorry—I've been trying to stay in bed, sedentary, for much of the day (and night, but that goes without saying) since last Wednesday, when I got some not-great news at a medical appointment. Mandatory bed rest when you're physically very unwell is pretty easy; turns out … Continue reading Compulsively Knitting for Fun, Entertainment, and Distraction
Due to excuses mostly unrelated to epilepsy, I haven't been posting on this blog as frequently as I once did—I'll try to be better, but no promises. I had an appointment with my epilepsy specialist on Thursday, though, so I figured that I'd make the effort to write a shortish entry with a (kind of … Continue reading Boring Update
In my last entry, dedicated to gloating about a major reduction in my tonic-clonic seizures, I indicated that I'd give an update about my complex partials "in a future post." Believe it or not, I'm following through, and in a relatively timely manner, no less. This is that future post. The future is now. I … Continue reading Best Month Ever! (Well, in the Past Year.)
After reviewing his records of such things, my husband informed me a few days ago that my tonic-clonic seizures have almost disappeared. In fact, over the past two months, I’ve only experienced one. One. I knew, or at least suspected, that I wasn't having very many of them, but it hadn't occurred to me to check … Continue reading Bye(?), Convulsive Seizures
This has been a really hard epilepsy week. Last evening marked the third in a row with a tonic-clonic seizure, which I usually have relatively rarely. The result was a restless night due to muscle pain and nausea, and since I was still under the weather this morning, I had to cancel plans, activating my … Continue reading Seizure-Sick
I've been going to see my epileptologist every two weeks or so to have my VNS adjusted—and for other epilepsy stuff—since, um, December? (Maybe since sometime in November. Please excuse my imprecision; I'm going to go ahead and use the "bad memory for neurological reasons" line, but really I'm just too lazy to scan through … Continue reading Two Weeks to Two Months: A Tangible Sign of Progress (Yay!)
