Self-Managing

I recently signed up for a six-part workshop on chronic-illness self-management offered by one of my healthcare providers. I'd say I'm pretty good at self-managing my primary chronic-health condition—I do my best, anyhow—but God knows there's always room for improvement, and since I'm currently making optimizing seizure control and my recovery from anorexia nervosa my … Continue reading Self-Managing

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Let’s Be Aware (for Epilepsy Awareness Month)

I haven’t done much thus far to celebrate Epilepsy Awareness Month (March) or Purple Day (March 26). Though I had fantastic ambitions to throw a theme party for Purple Day, I was eventually able to acknowledge that given the energy that the tasks would require, it’s probably too soon after my latest period of seizure … Continue reading Let’s Be Aware (for Epilepsy Awareness Month)

It’s Almost 2019! Time for a Disjointed Post.

It’s me! It’s been (practically) forever! Don’t get too excited: I’m just dropping in to wish you a happy end to 2018 and beginning to 2019. Since I keep meaning to compose a long catch-up/excuse post and then collapsing under the pressure of having so much to catch up on and not knowing how much … Continue reading It’s Almost 2019! Time for a Disjointed Post.

Representation Matters: Netflix, “The After Party,” and How to Hurt One Group in Order to Entertain Another

Though I'm a little late to the party (sorry, that was a groaner), I wanted to weigh in on an unlikely controversy that has many members of the epilepsy community angry. I'm angry, too. In August, Netflix released the film The After Party. I haven't watched it—I'll admit that I'm a little curious, but I know … Continue reading Representation Matters: Netflix, “The After Party,” and How to Hurt One Group in Order to Entertain Another

Compulsively Knitting for Fun, Entertainment, and Distraction

For complicated reasons that aren't the topic of this post—sorry—I've been trying to stay in bed, sedentary, for much of the day (and night, but that goes without saying) since last Wednesday, when I got some not-great news at a medical appointment. Mandatory bed rest when you're physically very unwell is pretty easy; turns out … Continue reading Compulsively Knitting for Fun, Entertainment, and Distraction