If you know me irl (internet slang!!!) or are a regular reader of this blog, you're probably aware that I'm someone who places great value on controlling every aspect of my life I possibly can. My ability to stick to rigid, self-imposed rules is, as I've learned, a power that I can use for good … Continue reading Seizures, Supplements, and Sweatpants (Control!)
Tag: neurology
Birth-Yay! (Happy Birthday, Husband)
Yesterday I was in the same room as my husband for the second time in three months. In a happy coincidence that I hadn't, to be perfectly honest, actually considered when I asked for another exception to the hospital's current no-visitors policy and was given permission for him to come, it was both my husband's … Continue reading Birth-Yay! (Happy Birthday, Husband)
Choir with Dad
My dad, an accomplished musician and musicologist himself, has consistently encouraged me to foster my own appreciation for and skills in the musical arts. When I was a child, this came mostly in the form of my taking piano lessons—only briefly from him, though, since we quickly discovered that this kind of father-daughter collaboration wasn’t … Continue reading Choir with Dad
Ask and Ye Shall Sometimes Receive
I'm continuing to make lots of progress and am super grateful and all that, etc. etc. However, as you've probably gathered from the extensive complaining in which I've indulged in previous posts, it isn't all sunshine, unicorns, and high-energy ketogenic supplemental beverages. Although there've been many challenges, the one that's made me wallow the most … Continue reading Ask and Ye Shall Sometimes Receive
It’s Nice Out, and I Hate It
Looking out my window and at the weather app on my phone tells me that it's no longer winter, which is a little hard for me to process since this hospital stay began in early December and the last time I was outside was in February. Lemme tell you: I'm not a fan of everyone … Continue reading It’s Nice Out, and I Hate It
Cooperative Ketoing
I've now entered a new stage of my ketogenic-diet-for-seizure-control experiment. More accurately, since this is a joint effort in which he cooks the food and I eat it, my husband and I have made the transition to a stricter and, with any luck, more effective phase of (my) ketoing for (my) medical purposes. It was … Continue reading Cooperative Ketoing
A Glimmer of Hope for “a Challenging Case of Very Intractable Epileptic Seizures”
It's a pretty normal Saturday in hospital land. I've eaten many things and drunk many Ketocals. I've socialized a little (something I wasn't doing much of when my postictal psychosis was at its worst) and considered building a new LEGO set. I've had a seizure. My seizure frequency means that I wake up knowing that … Continue reading A Glimmer of Hope for “a Challenging Case of Very Intractable Epileptic Seizures”
A COVID-19 Post to Add to the Millions in Your Inbox (Please Read!)
As Canada locks down to prevent the spread of COVID-19, Toronto—the city in which I live—has taken bold, necessary steps to “flatten the curve.” Elementary and secondary schools are closed. Public libraries are closed. Most retail outlets are closed. Universities have transitioned to online learning. Lots of other stuff has happened in the gap between … Continue reading A COVID-19 Post to Add to the Millions in Your Inbox (Please Read!)
Another Update
Hey! 👋 It’s me with another of my incredibly sporadic updates. There’s been a lot going on in my brain over the past few weeks, so naturally I'm choosing now, when I’m most likely to commit egregious spelling and grammar errors and to produce a longwinded and disjointed post, to break my blog silence. If … Continue reading Another Update
Eight Weeks, and All I Have to Show for Them Is a Mostly Unedited Blog Post (and lots of empty Ensure Plus bottles and many seizures and significant progress)
For several weeks, I kept going back to the same now-musty post in my drafts folder, making minor changes, staring at what I’d written, and then inevitably becoming overwhelmed and distracted by other tasks, 9.5 times out of 10 a meal or a bottle of Ensure Plus. It was time to acknowledge that the longer, … Continue reading Eight Weeks, and All I Have to Show for Them Is a Mostly Unedited Blog Post (and lots of empty Ensure Plus bottles and many seizures and significant progress)
De Morbo Sacro: Life and/with Epilepsy 