Last weekend brought another fistful of firsts. And a plateful of cabbage rolls, but I'll get to that. After our recentish night at a downtown hotel, my husband and I immediately started plotting another trip. For a number of reasons—laziness, abundance of choice, life being busy and full, etc.—it took us a while to get … Continue reading On the Road Again
I'm not going to pretend that I didn't go into the neurology appointment I had last Thursday with a clear goal and unrealistically high hopes that I'd achieve it. Given the level of anticipatory anxiety I usually experience before most encounters with medical professionals (no matter how kind and understanding said professional may be), and … Continue reading Powering Up
I meant to write this post a month or so ago but never got around to it. This morning, though, a conversation with a friend reminded me that this, of all things, is something to document in a semi-public forum. Here I am, then, documenting it semi-publicly, basking in my own glory (what else is … Continue reading Personal Support
My husband and I have been putting real effort into transforming our apartment into a space that reflects where we are in our life rather than where we were when we moved in. Last March, we had no choice but to make design and other decisions based first and foremost on my accessibility and health … Continue reading Making Space
It's been another week full of highs. For reasons of expediency, I'll limit myself to documenting just one of them today. Rest assured, though, that you can expect more gloating in future entries. I'm currently in the lobby of my building sipping a coffee and breaking up my afternoon with a welcome change of scenery. … Continue reading And a Door Opens
I had one of those productive-but-frustrating appointments on Thursday morning, the kind that leaves me bristling with resentment in the moment but settled into a better, more balanced place a mere thirty minutes or so later. As I won't stop internet (and real-life) shouting in recent weeks, I’m in the middle of a huge developmental … Continue reading Hold On
For the good part of a year, I found it hard to believe that I was home. Funny, then, that I'm going to celebrate the end of that year by sleeping in a bed not my own. The difference, of course, is that for the first time in what feels like forever, a night away … Continue reading Away from Home
Now that I’ve started taking showers in the shower rather than supine in bed and am thus able to wash my hair the old-fashioned way, I've become, for perhaps the first time in my life, open to the possibility that expensive shampoo, conditioner, and styling goops might make a difference. To clarify, I in no … Continue reading (Win)hair
I've been awaiting this day for months with a curious mix of over-the-top excitement and nervous anticipation, proud and pumped but not wanting to jinx myself. Exactly a year ago, I was discharged from the hospital. That's right: today marks a year since I've been an inpatient. A year without an admission. A year without … Continue reading It’s Been (Quite) a Year
I'm not sure my husband is particularly happy about the consequences that my latest accomplishment (and, in some ways, the greatest one besides the obvious stuff such as, you know, surviving) will have on his ability to enjoy the night without getting soaked in second-hand water. Yesterday evening, I showered in our shower for the … Continue reading The Proverbial Floodgates
De Morbo Sacro: Life and/with Epilepsy 