Hello, ER. (I Hate You, Phenytoin.)

I guess I jinxed myself with my last post about getting out of my neighbourhood—or maybe the problem was that getting out of my neighbourhood was way too exciting for my brain to handle—because two weeks ago, I made another journey to the hospital. This one unplanned, in an ambulance, and while actively seizing. It’d … Continue reading Hello, ER. (I Hate You, Phenytoin.) →

A Silvery Dilantinish Lining

I’ve been feeling so much better since that episode of status epilepticus. As I’ve had time to recover from the seizure itself, my Dilantin level has gradually come down, though it’s not yet at an ideal place (more on that in a moment). Best of all, and somewhat paradoxically, I’ve been having way fewer seizures … Continue reading A Silvery Dilantinish Lining →

Endocrinology Appointment for the Weak-Boned and Strong-Willed

My bone health has been an ongoing concern due to my anticonvulsants, several of which can cause decreased bone density, and to my eating disorder. My dread of this year's bone scan and endocrinologist appointment was not, then, entirely irrational, though it was admittedly a little extreme. Unsure whether or not I could handle the … Continue reading Endocrinology Appointment for the Weak-Boned and Strong-Willed →

(Seizure) Status

Well, friends, the last while has been, um, interesting, at least from a seizure perspective. At the core of this interestingness have been continuing Dilantin woes. I really wish that Dilantin weren't the anticonvulsant that seems to be most effective for me in terms of seizure control, mostly because a) it's been a pain in … Continue reading (Seizure) Status →

Check In/Check Up

I’ll begin by acknowledging that despite having had the best of intentions to write at least a post a week throughout January, I’ve instead continued to more or less ignore this blog. I’ve had legitimate reasons for falling short on my WordPress duties, but the guilt nonetheless remains, so I’m just, you know, putting it … Continue reading Check In/Check Up →

I’m Home, Getting Better, and Really Cranky

I was discharged from the neuro ward last Monday evening (appropriately, I guess, the date of my release coincided with Purple Day [for epilepsy awareness]). Except for an appointment a few days ago and a ten-minute walk yesterday afternoon, I've been more or less chilling ever since. I hate chilling. Although I'm super happy to … Continue reading I’m Home, Getting Better, and Really Cranky →

Dilantin, ER, Vomit: A(nother) Scattered Blog Post

I'm currently prescribed five anticonvulsants. Five. Some are better than others, but each is its own special flower/beast, in terms of side-effect profile. That said, I'm grateful that I've found a combination of medications that's kept me out of the hospital since the summer.* Among the drugs currently inhabiting my blister pack is phenytoin (Dilantin), … Continue reading Dilantin, ER, Vomit: A(nother) Scattered Blog Post →

Belated Update: Another Visit to 5B (Yeah, I Know)

I'm a little late—what else is new?—with this, but I thought I'd write a bit about my latest visit to the neuro ward, a.k.a. my home away from home this year. First: I've been out for a while now, so yay! In fact, with the medication adjustment done in hospital, I'm super stable. In fact, … Continue reading Belated Update: Another Visit to 5B (Yeah, I Know) →