Today something I’d started to think would never happen at long last did (happen, that is). Call it a September miracle, call it the cumulation of over nine months of intensive medical treatment, call it what you want. All that matters is that I’m home. Not that I was excited to leave or anything. I’ve … Continue reading And Now, Home(!)
Well, readers, this has been quite the week. Let me start with the positive: I’m starting to feel significantly better, and I’m not dead. (I guess those two things are connected.) Oh, and I don’t remember most of Monday and Tuesday, which is probably good. Yep, I’m being pretty dramatic. I feel like I deserve … Continue reading A Terrible Week
I’m working on a normal-length post about something more important than what I’m about to document, but since an ... inspiring(?) event has transpired in the meantime, I find myself spontaneously moved to write. I mean, how could I not inform you that a Ketocal explosion recently took place in my hospital room? “Explosion” is, … Continue reading This Post Is about a (Minor) Ketocal Explosion
New visitors policies for this hospital system were recently announced. I was told yesterday that under the updated guidelines, my husband can now be classified as an "Essential Care Partner" and visit me twice a week for two hours at a go. My nurse was fantastic about getting the requisite paperwork filled out so that … Continue reading Ninth Wedding Anniversary: A PDA (Sorry, Husband)
Look at me, blogging more regularly! #bored The bad news is, as the title of this post makes abundantly clear, that this one's a real downer. Sorry. I'll balance that out a little with a picture of the bulletin board in my room. In case you're wondering, the duck's name is Marvin, and he works … Continue reading A Bad Day
While eating the second avocado of my breakfast this morning, I realized that today is the six-month mark of this hospitalization. Six months. That's ... a significant amount of time. Seriously. So much has changed outside these walls since I got here: seasons have passed, a pandemic has begun, major change is taking place in … Continue reading Six Months, and All I Have to Show for Them Is Significant Progress and a Cheesy Paint by Numbers
Looking out my window and at the weather app on my phone tells me that it's no longer winter, which is a little hard for me to process since this hospital stay began in early December and the last time I was outside was in February. Lemme tell you: I'm not a fan of everyone … Continue reading It’s Nice Out, and I Hate It
It's a pretty normal Saturday in hospital land. I've eaten many things and drunk many Ketocals. I've socialized a little (something I wasn't doing much of when my postictal psychosis was at its worst) and considered building a new LEGO set. I've had a seizure. My seizure frequency means that I wake up knowing that … Continue reading A Glimmer of Hope for “a Challenging Case of Very Intractable Epileptic Seizures”
On Monday, a friend sent me an illustration from an Instagram account that I'd never heard of (I'm now hooked). Though the artist's life experience is, of course, different from my own, I was struck by how deeply her sentiment—one that I didn't realize I shared—resonated with me. I'm guessing that a visual would be … Continue reading Inspiration Expectation: Why It’s Not OK to Want Me to “Perform” for You
Yesterday morning, I had a routine checkup with my epileptologist. In anticipation of an event that's historically been by and large unremarkable, with a doctor who's never been anything but kind to me, I naturally spent Monday night—OK, most of the last week—obsessing about the various ways in which it might go wrong. I won't … Continue reading Checkup
