Look at me, blogging more regularly! #bored The bad news is, as the title of this post makes abundantly clear, that this one's a real downer. Sorry. I'll balance that out a little with a picture of the bulletin board in my room. In case you're wondering, the duck's name is Marvin, and he works … Continue reading A Bad Day
While eating the second avocado of my breakfast this morning, I realized that today is the six-month mark of this hospitalization. Six months. That's ... a significant amount of time. Seriously. So much has changed outside these walls since I got here: seasons have passed, a pandemic has begun, major change is taking place in … Continue reading Six Months, and All I Have to Show for Them Is Significant Progress and a Cheesy Paint by Numbers
Looking out my window and at the weather app on my phone tells me that it's no longer winter, which is a little hard for me to process since this hospital stay began in early December and the last time I was outside was in February. Lemme tell you: I'm not a fan of everyone … Continue reading It’s Nice Out, and I Hate It
It's a pretty normal Saturday in hospital land. I've eaten many things and drunk many Ketocals. I've socialized a little (something I wasn't doing much of when my postictal psychosis was at its worst) and considered building a new LEGO set. I've had a seizure. My seizure frequency means that I wake up knowing that … Continue reading A Glimmer of Hope for “a Challenging Case of Very Intractable Epileptic Seizures”
On Monday, a friend sent me an illustration from an Instagram account that I'd never heard of (I'm now hooked). Though the artist's life experience is, of course, different from my own, I was struck by how deeply her sentiment—one that I didn't realize I shared—resonated with me. I'm guessing that a visual would be … Continue reading Inspiration Expectation: Why It’s Not OK to Want Me to “Perform” for You
Yesterday morning, I had a routine checkup with my epileptologist. In anticipation of an event that's historically been by and large unremarkable, with a doctor who's never been anything but kind to me, I naturally spent Monday night—OK, most of the last week—obsessing about the various ways in which it might go wrong. I won't … Continue reading Checkup
One of the feelings I hate most is the one that keeps nagging at you when you've made a plan that you know that you shouldn't keep but don't want to cancel given that doing so would entail conceding that you're not as recovered as you'd like to think that you are. As a purely … Continue reading The “Right Thing” Is Hard to Do: Cancelling Plans, Looking Forward
I recently mentioned in a post on Facebook, I think it was, that a nurse in the neurology ward suggested that assembling LEGO sets of around 500 pieces would be useful in my recovery process since I was (and still am, though to a lesser extent) having trouble with fine motor skills. This is when … Continue reading The LEGO Fairy
Last Friday—yes, I'm a little behind on my posts—a physiotherapist came to our apartment to help me learn how to be less terrified of going down the stairs and do simple exercises in order to become a little less deconditioned after two months of doing almost nothing but chillaxin' (i.e., lying in a hospital bed). … Continue reading One Step at a Time (Really): First Visit from the Physiotherapist
De Morbo Sacro: Life and/with Epilepsy 