Seizures, Supplements, and Sweatpants (Control!)

If you know me irl (internet slang!!!) or are a regular reader of this blog, you're probably aware that I'm someone who places great value on controlling every aspect of my life I possibly can. My ability to stick to rigid, self-imposed rules is, as I've learned, a power that I can use for good … Continue reading Seizures, Supplements, and Sweatpants (Control!)

Ask and Ye Shall Sometimes Receive

I'm continuing to make lots of progress and am super grateful and all that, etc. etc. However, as you've probably gathered from the extensive complaining in which I've indulged in previous posts, it isn't all sunshine, unicorns, and high-energy ketogenic supplemental beverages. Although there've been many challenges, the one that's made me wallow the most … Continue reading Ask and Ye Shall Sometimes Receive

A Glimmer of Hope for “a Challenging Case of Very Intractable Epileptic Seizures”

It's a pretty normal Saturday in hospital land. I've eaten many things and drunk many Ketocals. I've socialized a little (something I wasn't doing much of when my postictal psychosis was at its worst) and considered building a new LEGO set. I've had a seizure. My seizure frequency means that I wake up knowing that … Continue reading A Glimmer of Hope for “a Challenging Case of Very Intractable Epileptic Seizures”

Endocrinology Appointment for the Weak-Boned and Strong-Willed

My bone health has been an ongoing concern due to my anticonvulsants, several of which can cause decreased bone density, and to my eating disorder. My dread of this year's bone scan and endocrinologist appointment was not, then, entirely irrational, though it was admittedly a little extreme. Unsure whether or not I could handle the … Continue reading Endocrinology Appointment for the Weak-Boned and Strong-Willed

Awareness of a Different and Very Uncomfortable Variety

I’m nearing the end—I think; fingers crossed—of an episode of postictal psychosis that began a day after a cluster of seizures I had on Thursday night, continued through the weekend, and seemed to get worse Monday afternoon, perhaps because my brain decided to surprise me with another seizure cluster on Sunday evening. Of all the … Continue reading Awareness of a Different and Very Uncomfortable Variety