A great/possibly the best thing about being confined to a hospital unit (for seven months, as of yesterday đ) is feeling justified in wearing whatever the h-e-double-hockey-sticks I so desire. As it turns out, what I so desire, at least 90% of the time, are sweatpants paired with a novelty T-shirt. Iâm well aware that … Continue reading Novelty T-Shirts and Why I Love Them
Tag: seizures
Ninth Wedding Anniversary: A PDA (Sorry, Husband)
New visitors policies for this hospital system were recently announced. I was told yesterday that under the updated guidelines, my husband can now be classified as an "Essential Care Partner" and visit me twice a week for two hours at a go. My nurse was fantastic about getting the requisite paperwork filled out so that … Continue reading Ninth Wedding Anniversary: A PDA (Sorry, Husband)
A Bad Day
Look at me, blogging more regularly! #bored The bad news is, as the title of this post makes abundantly clear, that this one's a real downer. Sorry. I'll balance that out a little with a picture of the bulletin board in my room. In case you're wondering, the duck's name is Marvin, and he works … Continue reading A Bad Day
Seizures, Supplements, and Sweatpants (Control!)
If you know me irl (internet slang!!!) or are a regular reader of this blog, you're probably aware that I'm someone who places great value on controlling every aspect of my life I possibly can. My ability to stick to rigid, self-imposed rules is, as I've learned, a power that I can use for good … Continue reading Seizures, Supplements, and Sweatpants (Control!)
Birth-Yay! (Happy Birthday, Husband)
Yesterday I was in the same room as my husband for the second time in three months. In a happy coincidence that I hadn't, to be perfectly honest, actually considered when I asked for another exception to the hospital's current no-visitors policy and was given permission for him to come, it was both my husband's … Continue reading Birth-Yay! (Happy Birthday, Husband)
Choir with Dad
My dad, an accomplished musician and musicologist himself, has consistently encouraged me to foster my own appreciation for and skills in the musical arts. When I was a child, this came mostly in the form of my taking piano lessonsâonly briefly from him, though, since we quickly discovered that this kind of father-daughter collaboration wasnât … Continue reading Choir with Dad
Ask and Ye Shall Sometimes Receive
I'm continuing to make lots of progress and am super grateful and all that, etc. etc. However, as you've probably gathered from the extensive complaining in which I've indulged in previous posts, it isn't all sunshine, unicorns, and high-energy ketogenic supplemental beverages. Although there've been many challenges, the one that's made me wallow the most … Continue reading Ask and Ye Shall Sometimes Receive
Six Months, and All I Have to Show for Them Is Significant Progress and a Cheesy Paint by Numbers
While eating the second avocado of my breakfast this morning, I realized that today is the six-month mark of this hospitalization. Six months. That's ... a significant amount of time. Seriously. So much has changed outside these walls since I got here: seasons have passed, a pandemic has begun, major change is taking place in … Continue reading Six Months, and All I Have to Show for Them Is Significant Progress and a Cheesy Paint by Numbers
It’s Nice Out, and I Hate It
Looking out my window and at the weather app on my phone tells me that it's no longer winter, which is a little hard for me to process since this hospital stay began in early December and the last time I was outside was in February. Lemme tell you: I'm not a fan of everyone … Continue reading It’s Nice Out, and I Hate It
A Post about Dolls
First, an update on this hospital stay: Iâm still here. Iâm still tired of being here. Iâm now tired of writing about being here. And that, my friends, is all the justification I need to shift gears and blog about dolls. This isnât going to be a controversial post about whether or not parents should … Continue reading A Post about Dolls
De Morbo Sacro: Life and/with Epilepsy 