It Was Purple Day (for Epilepsy Awareness) on Saturday

… and, to be honest, I only remembered because a friend sent me a text wishing me a happy Purple Day. I’m pretty sure the fact that it totally and completely slipped my mind makes me a bad PWLWE (Person Who Lives with Epilepsy). Or maybe it has more to do with the other “stuff” … Continue reading It Was Purple Day (for Epilepsy Awareness) on Saturday

Creative Solutions to Practical Problems

My husband took a well-deserved vacation last week. He spent it both relaxing and getting things done, and I spent most of it in his office, which I commandeered the Friday his time off began and quickly turned into a low(er)-stimuli retreat—my version of a spa, minus the pedicures and saunas and without the danger … Continue reading Creative Solutions to Practical Problems

A Glimmer of Hope for “a Challenging Case of Very Intractable Epileptic Seizures”

It's a pretty normal Saturday in hospital land. I've eaten many things and drunk many Ketocals. I've socialized a little (something I wasn't doing much of when my postictal psychosis was at its worst) and considered building a new LEGO set. I've had a seizure. My seizure frequency means that I wake up knowing that … Continue reading A Glimmer of Hope for “a Challenging Case of Very Intractable Epileptic Seizures”

A Short, Self-Congratulatory, and Poorly Edited Post (I Went on a Trip and Didn’t Die!)

As I write this, I'm on my way home from the vacation in British Columbia that I had to reschedule last month. As I actually post this, I've been back in Toronto for several days. This means that I made it to my departure date without needing to reschedule for a second time; made it to … Continue reading A Short, Self-Congratulatory, and Poorly Edited Post (I Went on a Trip and Didn’t Die!)

Let’s Be Aware (for Epilepsy Awareness Month)

I haven’t done much thus far to celebrate Epilepsy Awareness Month (March) or Purple Day (March 26). Though I had fantastic ambitions to throw a theme party for Purple Day, I was eventually able to acknowledge that given the energy that the tasks would require, it’s probably too soon after my latest period of seizure … Continue reading Let’s Be Aware (for Epilepsy Awareness Month)