Seizures, Supplements, and Sweatpants (Control!)

If you know me irl (internet slang!!!) or are a regular reader of this blog, you're probably aware that I'm someone who places great value on controlling every aspect of my life I possibly can. My ability to stick to rigid, self-imposed rules is, as I've learned, a power that I can use for good … Continue reading Seizures, Supplements, and Sweatpants (Control!) →

Birth-Yay! (Happy Birthday, Husband)

Yesterday I was in the same room as my husband for the second time in three months. In a happy coincidence that I hadn't, to be perfectly honest, actually considered when I asked for another exception to the hospital's current no-visitors policy and was given permission for him to come, it was both my husband's … Continue reading Birth-Yay! (Happy Birthday, Husband) →

Choir with Dad

My dad, an accomplished musician and musicologist himself, has consistently encouraged me to foster my own appreciation for and skills in the musical arts. When I was a child, this came mostly in the form of my taking piano lessons—only briefly from him, though, since we quickly discovered that this kind of father-daughter collaboration wasn’t … Continue reading Choir with Dad →

Ask and Ye Shall Sometimes Receive

I'm continuing to make lots of progress and am super grateful and all that, etc. etc. However, as you've probably gathered from the extensive complaining in which I've indulged in previous posts, it isn't all sunshine, unicorns, and high-energy ketogenic supplemental beverages. Although there've been many challenges, the one that's made me wallow the most … Continue reading Ask and Ye Shall Sometimes Receive →

Six Months, and All I Have to Show for Them Is Significant Progress and a Cheesy Paint by Numbers

While eating the second avocado of my breakfast this morning, I realized that today is the six-month mark of this hospitalization. Six months. That's ... a significant amount of time. Seriously. So much has changed outside these walls since I got here: seasons have passed, a pandemic has begun, major change is taking place in … Continue reading Six Months, and All I Have to Show for Them Is Significant Progress and a Cheesy Paint by Numbers →

It’s Nice Out, and I Hate It

Looking out my window and at the weather app on my phone tells me that it's no longer winter, which is a little hard for me to process since this hospital stay began in early December and the last time I was outside was in February. Lemme tell you: I'm not a fan of everyone … Continue reading It’s Nice Out, and I Hate It →

I’m a Unicorn! 🦄 ✅

I'm long overdue for a bigger/better/longer/still vagueish update about what's been happening here at the hospital (which is now basically my second home), but, as is often the case, laziness has prevailed over my genuinely good intentions. I've thus managed to knit most of a blanket and play more games of online Boggle than I … Continue reading I’m a Unicorn! 🦄 ✅ →

A Post about Dolls

First, an update on this hospital stay: I’m still here. I’m still tired of being here. I’m now tired of writing about being here. And that, my friends, is all the justification I need to shift gears and blog about dolls. This isn’t going to be a controversial post about whether or not parents should … Continue reading A Post about Dolls →

Cooperative Ketoing

I've now entered a new stage of my ketogenic-diet-for-seizure-control experiment. More accurately, since this is a joint effort in which he cooks the food and I eat it, my husband and I have made the transition to a stricter and, with any luck, more effective phase of (my) ketoing for (my) medical purposes. It was … Continue reading Cooperative Ketoing →

A Glimmer of Hope for “a Challenging Case of Very Intractable Epileptic Seizures”

It's a pretty normal Saturday in hospital land. I've eaten many things and drunk many Ketocals. I've socialized a little (something I wasn't doing much of when my postictal psychosis was at its worst) and considered building a new LEGO set. I've had a seizure. My seizure frequency means that I wake up knowing that … Continue reading A Glimmer of Hope for “a Challenging Case of Very Intractable Epileptic Seizures” →