Being in an epilepsy monitoring unit is, it seems, the best anticonvulsant I've tried yet. At home, I have at least a few seizures a month, and that’s while on my medications. Here, I just finished tapering off Vimpat and still haven’t had a single “event.” Gotta get the seizure train rollin’ if I want … Continue reading Best Anticonvulsant Ever
There was a new epileptologist doctor on duty today, and she suggested that I try sleep deprivation to get the seizure train rolling. This means staying up until four in the morning, sleeping until nine, then making it through the day without naps—which, to be honest, is an only slightly shifted and shortened version of … Continue reading Sleep Deprivation for a Cause
How quickly things change. One minute I'm blogging about a pesky tooth infection; the next, I'm lounging in a hospital bed in my moose PJs hoping for as many seizures in as short a time as possible so that I can rejoin the outside world and become a productive member of society again (it's all … Continue reading Sudden Turn of Events: Epilepsy Monitoring Unit/Worst Staycay Ever (Days 1 and 2 Complete!)
Since I know how how much everyone cares about the ongoing drama that is the state of my teeth—despite, I feel obligated to add, the obsessive work I put into caring for them (and I mean "obsessive" quite literally)—you'll be fascinated to read that last Wednesday evening, a few hours after I finished teaching (thank … Continue reading Mystery Tooth Pain Solved! Or Why I Almost Performed a DIY Extraction Last Wednesday Night
Some of the young adults that I've been collaborating with since the epilepsy summit that I attended in DC in July 2014 met in Toronto this past weekend to discuss our progress, plan upcoming projects, and work on our current one. It was an engaging, intense, fulfilling few days, and for the first time in … Continue reading Epilepsy and the Importance of Community
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This morning my husband and I woke up early (well, early for a Sunday) and went downtown to the starting point for the inaugural Purple Walk for Epilepsy, which took place in conjunction with BuskerFest in support of Epilepsy Toronto. Before continuing, I'll say that Tristan Thompson, a famous NBA player, was there, and I was … Continue reading Purple Tears (of Gratitude)
My last post was a triumphant one, so I feel a little guilty cancelling that out by being a total downer, but, you know. Gotta keep it real. Life is, after all, keeping me on my toes. I was debating whether or not to write a separate entry about the dental trauma that I experienced last … Continue reading Broken Tooth and Shattered Dream: But Really, It Could’ve Been Worse
I was going to post this last Wednesday upon landing, but the airline lost my bag, and I temporarily lost the ability to think about anything but the fact that my beloved stuffed bear, Bear, was potentially gone forever or about the fact that the whole ordeal was really drawn-out and frustrating from start to … Continue reading Flashback … Sunday? (I Was on a Plane!)
Ready for some epilepsy real talk? Doesn't matter: the beauty of maintaining my own little corner of the internet is that I can write about (almost?) whatever I want, I'm in an honest mood, and you can stop reading and go listen to This American Life whenever you decide that visualizing me having a seizure on the … Continue reading Bathroom Seizures: Exactly What They Sound Like
De Morbo Sacro: Life and/with Epilepsy 