My husband and I both got our second Pfizer dose last Thursday. We’d been scheduled to receive it at the end of July, so it was really, really nice to be given the opportunity to change our appointment date by such a significant chunk of time. 💉💪🏻✔️ 🎉 It’s been interesting to observe that relief … Continue reading Double Jabbed!
It's been a challenging few weeks. My dietitian and I have been experimenting with slowly ramping up the carbohydrates in my meal plan. It's all trial and error, really, this trying to find a balance between managing my seizures and working toward my weight-gain goals. The process is rewarding when I make tangible and relatively … Continue reading A Blip Is (Just) a Blip
As I write this, it's 7:00 a.m. on Christmas morning, and I've been awake for hours. The stockings are filled, there's fresh snow on the ground, and I've already had a few cups of coffee. I'm trying to be quiet, but not too quiet because I want my husband to get up. Did I mention … Continue reading This Christmas
It’s been just over a week since I came home, and I’m happy to report that I’m still here and that it’s still pretty much the best (and that I took down the stray Christmas decorations that my husband had left up since last year). Though I was feeling pretty darn good about leaving the … Continue reading Pretty Much the Best
Today something I’d started to think would never happen at long last did (happen, that is). Call it a September miracle, call it the cumulation of over nine months of intensive medical treatment, call it what you want. All that matters is that I’m home. Not that I was excited to leave or anything. I’ve … Continue reading And Now, Home(!)
I’m working on a normal-length post about something more important than what I’m about to document, but since an ... inspiring(?) event has transpired in the meantime, I find myself spontaneously moved to write. I mean, how could I not inform you that a Ketocal explosion recently took place in my hospital room? “Explosion” is, … Continue reading This Post Is about a (Minor) Ketocal Explosion
New visitors policies for this hospital system were recently announced. I was told yesterday that under the updated guidelines, my husband can now be classified as an "Essential Care Partner" and visit me twice a week for two hours at a go. My nurse was fantastic about getting the requisite paperwork filled out so that … Continue reading Ninth Wedding Anniversary: A PDA (Sorry, Husband)
Look at me, blogging more regularly! #bored The bad news is, as the title of this post makes abundantly clear, that this one's a real downer. Sorry. I'll balance that out a little with a picture of the bulletin board in my room. In case you're wondering, the duck's name is Marvin, and he works … Continue reading A Bad Day
If you know me irl (internet slang!!!) or are a regular reader of this blog, you're probably aware that I'm someone who places great value on controlling every aspect of my life I possibly can. My ability to stick to rigid, self-imposed rules is, as I've learned, a power that I can use for good … Continue reading Seizures, Supplements, and Sweatpants (Control!)
I'm continuing to make lots of progress and am super grateful and all that, etc. etc. However, as you've probably gathered from the extensive complaining in which I've indulged in previous posts, it isn't all sunshine, unicorns, and high-energy ketogenic supplemental beverages. Although there've been many challenges, the one that's made me wallow the most … Continue reading Ask and Ye Shall Sometimes Receive
De Morbo Sacro: Life and/with Epilepsy 