Powering Up

I'm not going to pretend that I didn't go into the neurology appointment I had last Thursday with a clear goal and unrealistically high hopes that I'd achieve it. Given the level of anticipatory anxiety I usually experience before most encounters with medical professionals (no matter how kind and understanding said professional may be), and … Continue reading Powering Up →

Personal Support

I meant to write this post a month or so ago but never got around to it. This morning, though, a conversation with a friend reminded me that this, of all things, is something to document in a semi-public forum. Here I am, then, documenting it semi-publicly, basking in my own glory (what else is … Continue reading Personal Support →

Hold On

I had one of those productive-but-frustrating appointments on Thursday morning, the kind that leaves me bristling with resentment in the moment but settled into a better, more balanced place a mere thirty minutes or so later. As I won't stop internet (and real-life) shouting in recent weeks, I’m in the middle of a huge developmental … Continue reading Hold On →

Away from Home

For the good part of a year, I found it hard to believe that I was home. Funny, then, that I'm going to celebrate the end of that year by sleeping in a bed not my own. The difference, of course, is that for the first time in what feels like forever, a night away … Continue reading Away from Home →

(Win)hair

Now that I’ve started taking showers in the shower rather than supine in bed and am thus able to wash my hair the old-fashioned way, I've become, for perhaps the first time in my life, open to the possibility that expensive shampoo, conditioner, and styling goops might make a difference. To clarify, I in no … Continue reading (Win)hair →

It’s Been (Quite) a Year

I've been awaiting this day for months with a curious mix of over-the-top excitement and nervous anticipation, proud and pumped but not wanting to jinx myself. Exactly a year ago, I was discharged from the hospital. That's right: today marks a year since I've been an inpatient. A year without an admission. A year without … Continue reading It’s Been (Quite) a Year →

The Proverbial Floodgates

I'm not sure my husband is particularly happy about the consequences that my latest accomplishment (and, in some ways, the greatest one besides the obvious stuff such as, you know, surviving) will have on his ability to enjoy the night without getting soaked in second-hand water. Yesterday evening, I showered in our shower for the … Continue reading The Proverbial Floodgates →

The Beauty in Monotony

The longer I’m home, the more I appreciate monotony. Before I continue, let me provide a bit of clarification. In my head, I distinguish monotony from boredom (although there’s beauty in that, too). Rightly or wrongly, I’m not a huge fan of monotony’s duller cousin. Boredom is hours dragging on with little to break them … Continue reading The Beauty in Monotony →

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Rigid

Over time, my right foot has slowly loosened up (as I’m striving to in life in general). When I first started rehab, it hardly moved at all, but with much work, some coaxing, and a few Botox injections, it began flickering a little and then bending a bit. Eventually, I reached a kind of compromise … Continue reading Rigid →