I’m writing this (and publishing it, if I manage to finish it quickly enough) while on a plane bound for Victoria, BC. It’s been six years since I last visited the city in which I was born and grew up. The long separation hasn’t been by choice; until now, my health’s made the trip unfeasible. … Continue reading Go West, Young Wheelchair
My husband and I have been putting real effort into transforming our apartment into a space that reflects where we are in our life rather than where we were when we moved in. Last March, we had no choice but to make design and other decisions based first and foremost on my accessibility and health … Continue reading Making Space
It’s been a week. A good one, in some regards, but also a very challenging one. I’ve had a few health blips and a couple of appointments that’ve forced me to stop evading uncomfortable realities. Facing the future—particularly when aspects of it are uncertain—remains a huge stumbling block. Parts of me would rather cruise along … Continue reading Stitches
It’s been just over a month since I got home. The time’s both flown and crawled by. Where’s it gone? Why does it slow to a near-stop when my OCD thoughts and anxiety whirl out of control, as tends to happen when I have a moment alone with my neurologically “special” brain? This past week … Continue reading Counting the Little (and the Not-So-Little) Things
It was on a particularly challenging day last week that I received a message with an offer so generous it made me want to cry. (OK, fine; some tears were shed. I’m becoming an increasingly emotional beast with each passing year.) It was from my LEGO Fairy, who wanted to know if she could purchase … Continue reading Return of the LEGO Fairy
If you know me in “real” (scare quotes because what’s real, even, in this day and age?) life or read this blog, you almost certainly know that I’m a LEGO superfan. Those little plastic bricks aided me as I recovered from a brain injury; they’ve distracted me during long hospitalizations; they’ve rewired neurons fried from … Continue reading Yet Another LEGO Appreciation Post
I’ve been taking advantage of the last nice days of fall, and of my raging metabolism, which has turned me into a sweaty monster who prefers much-lower temperatures than I’m generally able to stand, by spending as much time as I possibly can outside, most of it (socially distanced from other customers) on the patio … Continue reading Preparing to Hibernate
It’s been just over a week since I came home, and I’m happy to report that I’m still here and that it’s still pretty much the best (and that I took down the stray Christmas decorations that my husband had left up since last year). Though I was feeling pretty darn good about leaving the … Continue reading Pretty Much the Best
Looking out my window and at the weather app on my phone tells me that it's no longer winter, which is a little hard for me to process since this hospital stay began in early December and the last time I was outside was in February. Lemme tell you: I'm not a fan of everyone … Continue reading It’s Nice Out, and I Hate It
When I was a kid, "The Christmas Angel" would stop by every four or five days beginning on December 1 and ending on Christmas Eve. Said Angel left small gifts on the kitchen table, often a piece of candy, sometimes a little toy worth a dollar or two, and her visits were eagerly anticipated and … Continue reading The Christmas Angel
De Morbo Sacro: Life and/with Epilepsy 