The fact that I’m home, in a new home I’d never stepped foot in (rolled into?) before last Sunday, is almost surreal. Sleeping in the same room as my husband? Eating at the same table? What is this? A beautiful, deeply satisfying, work in progress. As you likely anticipated, there’s a catch, for with the … Continue reading Home New Home
That’s right, friends. In approximately an hour and after nine months, give or take, I’ll be discharged. I’d be lying if I claimed that I’m not a little nervous. Change, especially change this big, is hard. As I wrote about in much greater detail in my last post, there are major ways in which my … Continue reading Happy Home Day!
I’ve once again let enough time elapse between posts that anxiety about how much has happened—more material for those blog entries that I always promise but never quite get around to writing—has made producing anything at all feel too overwhelming. Today, though, I somehow worked up the courage to start with a short update and … Continue reading Big Changes in the Works
I’ve been at rehab for over two weeks. I’ve settled in and already feel as if I’m making progress, though I’ll admit that, being the impatient person I am, I get frustrated that I’m not a specimen of perfect human health already. I try to consistently look back and reflect on where I was a … Continue reading Steady(ish) She Goes
It’s been a hectic but very positive week. Real progress is being made, readers! I traditionally haven’t done well with transitions. As I’m sure I’ve written a bazillion times before, my preference is usually to remain in an uncomfortable situation rather than face the risk presented by change. (Which happens to be one of my … Continue reading Transition
… and, to be honest, I only remembered because a friend sent me a text wishing me a happy Purple Day. I’m pretty sure the fact that it totally and completely slipped my mind makes me a bad PWLWE (Person Who Lives with Epilepsy). Or maybe it has more to do with the other “stuff” … Continue reading It Was Purple Day (for Epilepsy Awareness) on Saturday
I recently wrote a longish autobiographical piece about my childhood OCD-based fear of waterslides. (It’s still not polished, and I’m not sure what I’ll do with it after the final edit, so I’m not posting it here.) Waterslides weren’t the only way OCD affected my life when I was a kid, and my brain eventually … Continue reading Isolation, OCD, and a Request
It was on a particularly challenging day last week that I received a message with an offer so generous it made me want to cry. (OK, fine; some tears were shed. I’m becoming an increasingly emotional beast with each passing year.) It was from my LEGO Fairy, who wanted to know if she could purchase … Continue reading Return of the LEGO Fairy
If you know me in “real” (scare quotes because what’s real, even, in this day and age?) life or read this blog, you almost certainly know that I’m a LEGO superfan. Those little plastic bricks aided me as I recovered from a brain injury; they’ve distracted me during long hospitalizations; they’ve rewired neurons fried from … Continue reading Yet Another LEGO Appreciation Post
Tonight is New Year’s Eve. It isn’t a “holiday” my husband and I have traditionally celebrated in any major way, mostly because my bedtime is around 9:00 p.m. This year will be much the same; our plan is to play a game in the late afternoon, have a festive meal (with the Christmas crackers I … Continue reading Looking Forward (Happy NYE!)
De Morbo Sacro: Life and/with Epilepsy 