I slowly worked on a post about a then-upcoming solo trip to Victoria and about how much it meant to me and about how significant it was, etc. etc., for over a week but didn't manage to finish it because I kept having health setbacks that made it difficult both to articulate what I wanted … Continue reading Postponed Trip, Surprisingly Positive Attitude
Though I set myself the (completely arbitrary) goal of writing two blog posts in May, for various reasons, most of them medical, I wasn't able to follow through. It's not as if I forgot or didn't make an effort to get the job done; it's just that every time I sat down to force myself … Continue reading Redefining Productivity (Again)
My bone health has been an ongoing concern due to my anticonvulsants, several of which can cause decreased bone density, and to my eating disorder. My dread of this year's bone scan and endocrinologist appointment was not, then, entirely irrational, though it was admittedly a little extreme. Unsure whether or not I could handle the … Continue reading Endocrinology Appointment for the Weak-Boned and Strong-Willed
I’m nearing the end—I think; fingers crossed—of an episode of postictal psychosis that began a day after a cluster of seizures I had on Thursday night, continued through the weekend, and seemed to get worse Monday afternoon, perhaps because my brain decided to surprise me with another seizure cluster on Sunday evening. Of all the … Continue reading Awareness of a Different and Very Uncomfortable Variety
I haven’t done much thus far to celebrate Epilepsy Awareness Month (March) or Purple Day (March 26). Though I had fantastic ambitions to throw a theme party for Purple Day, I was eventually able to acknowledge that given the energy that the tasks would require, it’s probably too soon after my latest period of seizure … Continue reading Let’s Be Aware (for Epilepsy Awareness Month)
Well, friends, the last while has been, um, interesting, at least from a seizure perspective. At the core of this interestingness have been continuing Dilantin woes. I really wish that Dilantin weren't the anticonvulsant that seems to be most effective for me in terms of seizure control, mostly because a) it's been a pain in … Continue reading (Seizure) Status
I’ll begin by acknowledging that despite having had the best of intentions to write at least a post a week throughout January, I’ve instead continued to more or less ignore this blog. I’ve had legitimate reasons for falling short on my WordPress duties, but the guilt nonetheless remains, so I’m just, you know, putting it … Continue reading Check In/Check Up
It’s me! It’s been (practically) forever! Don’t get too excited: I’m just dropping in to wish you a happy end to 2018 and beginning to 2019. Since I keep meaning to compose a long catch-up/excuse post and then collapsing under the pressure of having so much to catch up on and not knowing how much … Continue reading It’s Almost 2019! Time for a Disjointed Post.
You might (rightfully) wonder why I decided to write about a lost object and a newfound friend at the City of Toronto's Solid Waste Management Services in a blog that's ostensibly about living with chronic illness(es). I asked myself the same, or at least a related, question. OK, questions—plural—since my brain isn't good at stopping … Continue reading Lost Engagement Ring, New Hero at Waste Management: A Happily Ever After
Though I'm a little late to the party (sorry, that was a groaner), I wanted to weigh in on an unlikely controversy that has many members of the epilepsy community angry. I'm angry, too. In August, Netflix released the film The After Party. I haven't watched it—I'll admit that I'm a little curious, but I know … Continue reading Representation Matters: Netflix, “The After Party,” and How to Hurt One Group in Order to Entertain Another
De Morbo Sacro: Life and/with Epilepsy 