It’s been just over a week since I came home, and I’m happy to report that I’m still here and that it’s still pretty much the best (and that I took down the stray Christmas decorations that my husband had left up since last year). Though I was feeling pretty darn good about leaving the … Continue reading Pretty Much the Best
Today something I’d started to think would never happen at long last did (happen, that is). Call it a September miracle, call it the cumulation of over nine months of intensive medical treatment, call it what you want. All that matters is that I’m home. Not that I was excited to leave or anything. I’ve … Continue reading And Now, Home(!)
New visitors policies for this hospital system were recently announced. I was told yesterday that under the updated guidelines, my husband can now be classified as an "Essential Care Partner" and visit me twice a week for two hours at a go. My nurse was fantastic about getting the requisite paperwork filled out so that … Continue reading Ninth Wedding Anniversary: A PDA (Sorry, Husband)
If you know me irl (internet slang!!!) or are a regular reader of this blog, you're probably aware that I'm someone who places great value on controlling every aspect of my life I possibly can. My ability to stick to rigid, self-imposed rules is, as I've learned, a power that I can use for good … Continue reading Seizures, Supplements, and Sweatpants (Control!)
While eating the second avocado of my breakfast this morning, I realized that today is the six-month mark of this hospitalization. Six months. That's ... a significant amount of time. Seriously. So much has changed outside these walls since I got here: seasons have passed, a pandemic has begun, major change is taking place in … Continue reading Six Months, and All I Have to Show for Them Is Significant Progress and a Cheesy Paint by Numbers
Looking out my window and at the weather app on my phone tells me that it's no longer winter, which is a little hard for me to process since this hospital stay began in early December and the last time I was outside was in February. Lemme tell you: I'm not a fan of everyone … Continue reading It’s Nice Out, and I Hate It
It's a pretty normal Saturday in hospital land. I've eaten many things and drunk many Ketocals. I've socialized a little (something I wasn't doing much of when my postictal psychosis was at its worst) and considered building a new LEGO set. I've had a seizure. My seizure frequency means that I wake up knowing that … Continue reading A Glimmer of Hope for “a Challenging Case of Very Intractable Epileptic Seizures”
As Canada locks down to prevent the spread of COVID-19, Toronto—the city in which I live—has taken bold, necessary steps to “flatten the curve.” Elementary and secondary schools are closed. Public libraries are closed. Most retail outlets are closed. Universities have transitioned to online learning. Lots of other stuff has happened in the gap between … Continue reading A COVID-19 Post to Add to the Millions in Your Inbox (Please Read!)
Hey! 👋 It’s me with another of my incredibly sporadic updates. There’s been a lot going on in my brain over the past few weeks, so naturally I'm choosing now, when I’m most likely to commit egregious spelling and grammar errors and to produce a longwinded and disjointed post, to break my blog silence. If … Continue reading Another Update
On this first day of August, I've been looking back over the last month and realizing that a major part of my doing-my-best-to-shrug-off-all-the-stuff-I-feel-powerless-about-and-thus-resent strategy in July was to repeat a simple phrase to myself, usually, but not always (being the awkward person I am), in my head. I've grown to appreciate the power of these … Continue reading July in Two Words (So What?)
De Morbo Sacro: Life and/with Epilepsy 