… and, to be honest, I only remembered because a friend sent me a text wishing me a happy Purple Day. I’m pretty sure the fact that it totally and completely slipped my mind makes me a bad PWLWE (Person Who Lives with Epilepsy). Or maybe it has more to do with the other “stuff” … Continue reading It Was Purple Day (for Epilepsy Awareness) on Saturday
If you know me in “real” (scare quotes because what’s real, even, in this day and age?) life or read this blog, you almost certainly know that I’m a LEGO superfan. Those little plastic bricks aided me as I recovered from a brain injury; they’ve distracted me during long hospitalizations; they’ve rewired neurons fried from … Continue reading Yet Another LEGO Appreciation Post
I'm taking a few minutes from my Boxing Day to wish you a happy holiday week (if that's relevant to you). I hope that you're striking a balance between celebration and safety and that you're responsibly marking the season in a way that feels right to you. In other words, Merry Christmas! Or not. My … Continue reading This Christmas
Every spring for the past many, my husband and I told ourselves that we were going to make better use of our patio, which is remarkably large for one belonging to a city apartment. In March, April, May, those shoulder months when the weather is periodically warm enough to allow you to imagine being outside … Continue reading The Patio
My husband and I both got our second Pfizer dose last Thursday. We’d been scheduled to receive it at the end of July, so it was really, really nice to be given the opportunity to change our appointment date by such a significant chunk of time. 💉💪🏻✔️ 🎉 It’s been interesting to observe that relief … Continue reading Double Jabbed!
Last week I finally, and, I'll add, rather triumphantly, replaced an iPhone that I'd tolerated for much longer than it'd made sense to. Before I proceed, I'll acknowledge that yes, I'm supremely aware that what I describe are problems that I'm extremely privileged to be in a position to whine about. With that out of … Continue reading Acquiring a New Phone, OCD Edition
It's been a challenging few weeks. My dietitian and I have been experimenting with slowly ramping up the carbohydrates in my meal plan. It's all trial and error, really, this trying to find a balance between managing my seizures and working toward my weight-gain goals. The process is rewarding when I make tangible and relatively … Continue reading A Blip Is (Just) a Blip
As I write this, it's 7:00 a.m. on Christmas morning, and I've been awake for hours. The stockings are filled, there's fresh snow on the ground, and I've already had a few cups of coffee. I'm trying to be quiet, but not too quiet because I want my husband to get up. Did I mention … Continue reading This Christmas
It’s been just over a week since I came home, and I’m happy to report that I’m still here and that it’s still pretty much the best (and that I took down the stray Christmas decorations that my husband had left up since last year). Though I was feeling pretty darn good about leaving the … Continue reading Pretty Much the Best
Today something I’d started to think would never happen at long last did (happen, that is). Call it a September miracle, call it the cumulation of over nine months of intensive medical treatment, call it what you want. All that matters is that I’m home. Not that I was excited to leave or anything. I’ve … Continue reading And Now, Home(!)
De Morbo Sacro: Life and/with Epilepsy 