On this first day of August, I've been looking back over the last month and realizing that a major part of my doing-my-best-to-shrug-off-all-the-stuff-I-feel-powerless-about-and-thus-resent strategy in July was to repeat a simple phrase to myself, usually, but not always (being the awkward person I am), in my head. I've grown to appreciate the power of these … Continue reading July in Two Words (So What?)
Well, friends, the last while has been, um, interesting, at least from a seizure perspective. At the core of this interestingness have been continuing Dilantin woes. I really wish that Dilantin weren't the anticonvulsant that seems to be most effective for me in terms of seizure control, mostly because a) it's been a pain in … Continue reading (Seizure) Status
It’s me! It’s been (practically) forever! Don’t get too excited: I’m just dropping in to wish you a happy end to 2018 and beginning to 2019. Since I keep meaning to compose a long catch-up/excuse post and then collapsing under the pressure of having so much to catch up on and not knowing how much … Continue reading It’s Almost 2019! Time for a Disjointed Post.
It's been several months since my second surgery and its ensuing complications, which included some left-sided weakness, and despite my many efforts, I haven't yet managed to convince my medical professionals that I'm ready to completely ditch the cane that I started using while in the hospital. Believe me, I've tried. With impressive persistence, too. … Continue reading Cane Game: Getting My Mobility On, Feeling Stuff
I'll start with a disclaimer: for obvious reasons, my memories of the event that's the topic of this post are kind of spotty, so I'm relying on witnesses (i.e., my husband) for much of what makes up the following. We're going to have to go ahead and assume that I wasn't being trolled when the … Continue reading Sunday Night in the ER
I've decided to continue to grant you a brief reprieve from long-winded stories about my hair, but only because I want to talk at too-great length about the almond-shaped collection of neurons in my right temporal lobe that's been at the top, figuratively speaking, of my mind for the past few days. I've always preferred … Continue reading My Amygdala, Myself
My husband and I have an ongoing narrative/discussion/negotiation/argument regarding how often I should wear my helmet-toque, the headgear about which I'm sure I've written in a past post (that I won't bother digging up for laziness reasons). His, probably correct, opinion: I should don it almost all the time. My fuelled-by-a-desire-to-preserve-the-last-shreds-of-dignity-in-a-life-currently-coloured-by-loss-of-control one: helmet-toque as protective … Continue reading Helmet-Toque Negotiations and the Search for (the Last Remaining Shreds of) Dignity