July in Two Words (So What?)

On this first day of August, I've been looking back over the last month and realizing that a major part of my doing-my-best-to-shrug-off-all-the-stuff-I-feel-powerless-about-and-thus-resent strategy in July was to repeat a simple phrase to myself, usually, but not always (being the awkward person I am), in my head. I've grown to appreciate the power of these … Continue reading July in Two Words (So What?)

(Seizure) Status

Well, friends, the last while has been, um, interesting, at least from a seizure perspective. At the core of this interestingness have been continuing Dilantin woes. I really wish that Dilantin weren't the anticonvulsant that seems to be most effective for me in terms of seizure control, mostly because a) it's been a pain in … Continue reading (Seizure) Status

Cane Game: Getting My Mobility On, Feeling Stuff

It's been several months since my second surgery and its ensuing complications, which included some left-sided weakness, and despite my many efforts, I haven't yet managed to convince my medical professionals that I'm ready to completely ditch the cane that I started using while in the hospital. Believe me, I've tried. With impressive persistence, too. … Continue reading Cane Game: Getting My Mobility On, Feeling Stuff

Helmet-Toque Negotiations and the Search for (the Last Remaining Shreds of) Dignity

My husband and I have an ongoing narrative/discussion/negotiation/argument regarding how often I should wear my helmet-toque, the headgear about which I'm sure I've written in a past post (that I won't bother digging up for laziness reasons). His, probably correct, opinion: I should don it almost all the time. My fuelled-by-a-desire-to-preserve-the-last-shreds-of-dignity-in-a-life-currently-coloured-by-loss-of-control one: helmet-toque as protective … Continue reading Helmet-Toque Negotiations and the Search for (the Last Remaining Shreds of) Dignity