When I was a kid, every year my dad lined up with tens of other hard-core parents on a predetermined morning sometime in November. The mission? Get tickets for a beloved event: the Breakfast with Santa that took place on the top floor of the downtown Eaton's in Victoria, British Columbia. For much of my … Continue reading Breakfast with Santa
Tag: OCD
Oh, Christmas Tree
My husband and I originally planned to put up our Christmas tree today, the first Saturday of the month. Last Friday, though, it occurred to me that the first weekend of December falls awfully late this year. (This realization may or may not have been linked to the abundance of tree-decorating posts that had begun … Continue reading Oh, Christmas Tree
Pretty Much the Best
It’s been just over a week since I came home, and I’m happy to report that I’m still here and that it’s still pretty much the best (and that I took down the stray Christmas decorations that my husband had left up since last year). Though I was feeling pretty darn good about leaving the … Continue reading Pretty Much the Best
Oh Hey There, It’s Me in the Neuro Ward
As I’m sure you’re aware, last Monday—my transfer day—has come and gone. I didn’t back out at the last minute; I was in near-constant freak-out mode; I experienced a weird ambulance ride with a nurse (one of my favourites), me on a stretcher because it’s policy even though I’m mobile and could’ve made the journey … Continue reading Oh Hey There, It’s Me in the Neuro Ward
Novelty T-Shirts and Why I Love Them
A great/possibly the best thing about being confined to a hospital unit (for seven months, as of yesterday 😐) is feeling justified in wearing whatever the h-e-double-hockey-sticks I so desire. As it turns out, what I so desire, at least 90% of the time, are sweatpants paired with a novelty T-shirt. I’m well aware that … Continue reading Novelty T-Shirts and Why I Love Them
Ninth Wedding Anniversary: A PDA (Sorry, Husband)
New visitors policies for this hospital system were recently announced. I was told yesterday that under the updated guidelines, my husband can now be classified as an "Essential Care Partner" and visit me twice a week for two hours at a go. My nurse was fantastic about getting the requisite paperwork filled out so that … Continue reading Ninth Wedding Anniversary: A PDA (Sorry, Husband)
Seizures, Supplements, and Sweatpants (Control!)
If you know me irl (internet slang!!!) or are a regular reader of this blog, you're probably aware that I'm someone who places great value on controlling every aspect of my life I possibly can. My ability to stick to rigid, self-imposed rules is, as I've learned, a power that I can use for good … Continue reading Seizures, Supplements, and Sweatpants (Control!)
It’s Nice Out, and I Hate It
Looking out my window and at the weather app on my phone tells me that it's no longer winter, which is a little hard for me to process since this hospital stay began in early December and the last time I was outside was in February. Lemme tell you: I'm not a fan of everyone … Continue reading It’s Nice Out, and I Hate It
A Glimmer of Hope for “a Challenging Case of Very Intractable Epileptic Seizures”
It's a pretty normal Saturday in hospital land. I've eaten many things and drunk many Ketocals. I've socialized a little (something I wasn't doing much of when my postictal psychosis was at its worst) and considered building a new LEGO set. I've had a seizure. My seizure frequency means that I wake up knowing that … Continue reading A Glimmer of Hope for “a Challenging Case of Very Intractable Epileptic Seizures”
Another Update
Hey! 👋 It’s me with another of my incredibly sporadic updates. There’s been a lot going on in my brain over the past few weeks, so naturally I'm choosing now, when I’m most likely to commit egregious spelling and grammar errors and to produce a longwinded and disjointed post, to break my blog silence. If … Continue reading Another Update
De Morbo Sacro: Life and/with Epilepsy 