It was on a particularly challenging day last week that I received a message with an offer so generous it made me want to cry. (OK, fine; some tears were shed. I’m becoming an increasingly emotional beast with each passing year.) It was from my LEGO Fairy, who wanted to know if she could purchase … Continue reading Return of the LEGO Fairy
If you know me in “real” (scare quotes because what’s real, even, in this day and age?) life or read this blog, you almost certainly know that I’m a LEGO superfan. Those little plastic bricks aided me as I recovered from a brain injury; they’ve distracted me during long hospitalizations; they’ve rewired neurons fried from … Continue reading Yet Another LEGO Appreciation Post
Tonight is New Year’s Eve. It isn’t a “holiday” my husband and I have traditionally celebrated in any major way, mostly because my bedtime is around 9:00 p.m. This year will be much the same; our plan is to play a game in the late afternoon, have a festive meal (with the Christmas crackers I … Continue reading Looking Forward (Happy NYE!)
I'm taking a few minutes from my Boxing Day to wish you a happy holiday week (if that's relevant to you). I hope that you're striking a balance between celebration and safety and that you're responsibly marking the season in a way that feels right to you. In other words, Merry Christmas! Or not. My … Continue reading This Christmas
In case past blog posts haven't made it abundantly clear, I am, in general, a Christmas person. Like, the kind of Christmas person who would, and did, just this year, purchase five (yes, five) Christmas-themed sweatshirts, not to mention a Christmas-themed T-shirt and several pairs of Christmas socks. The kind of person who wears that … Continue reading Christmas Feelings
It's been a challenging few weeks. My dietitian and I have been experimenting with slowly ramping up the carbohydrates in my meal plan. It's all trial and error, really, this trying to find a balance between managing my seizures and working toward my weight-gain goals. The process is rewarding when I make tangible and relatively … Continue reading A Blip Is (Just) a Blip
Today something I’d started to think would never happen at long last did (happen, that is). Call it a September miracle, call it the cumulation of over nine months of intensive medical treatment, call it what you want. All that matters is that I’m home. Not that I was excited to leave or anything. I’ve … Continue reading And Now, Home(!)
Well, readers, this has been quite the week. Let me start with the positive: I’m starting to feel significantly better, and I’m not dead. (I guess those two things are connected.) Oh, and I don’t remember most of Monday and Tuesday, which is probably good. Yep, I’m being pretty dramatic. I feel like I deserve … Continue reading A Terrible Week
I’m working on a normal-length post about something more important than what I’m about to document, but since an ... inspiring(?) event has transpired in the meantime, I find myself spontaneously moved to write. I mean, how could I not inform you that a Ketocal explosion recently took place in my hospital room? “Explosion” is, … Continue reading This Post Is about a (Minor) Ketocal Explosion
New visitors policies for this hospital system were recently announced. I was told yesterday that under the updated guidelines, my husband can now be classified as an "Essential Care Partner" and visit me twice a week for two hours at a go. My nurse was fantastic about getting the requisite paperwork filled out so that … Continue reading Ninth Wedding Anniversary: A PDA (Sorry, Husband)
De Morbo Sacro: Life and/with Epilepsy 