I’ll begin by acknowledging that despite having had the best of intentions to write at least a post a week throughout January, I’ve instead continued to more or less ignore this blog. I’ve had legitimate reasons for falling short on my WordPress duties, but the guilt nonetheless remains, so I’m just, you know, putting it … Continue reading Check In/Check Up
It’s me! It’s been (practically) forever! Don’t get too excited: I’m just dropping in to wish you a happy end to 2018 and beginning to 2019. Since I keep meaning to compose a long catch-up/excuse post and then collapsing under the pressure of having so much to catch up on and not knowing how much … Continue reading It’s Almost 2019! Time for a Disjointed Post.
I've been going to see my epileptologist every two weeks or so to have my VNS adjusted—and for other epilepsy stuff—since, um, December? (Maybe since sometime in November. Please excuse my imprecision; I'm going to go ahead and use the "bad memory for neurological reasons" line, but really I'm just too lazy to scan through … Continue reading Two Weeks to Two Months: A Tangible Sign of Progress (Yay!)
I'm a little late—what else is new?—with this, but I thought I'd write a bit about my latest visit to the neuro ward, a.k.a. my home away from home this year. First: I've been out for a while now, so yay! In fact, with the medication adjustment done in hospital, I'm super stable. In fact, … Continue reading Belated Update: Another Visit to 5B (Yeah, I Know)
I met with my epileptologist last Wednesday to follow up on the hospitalizations that seem to have plagued me this summer. Each of these mini vacays (ha…) from my everyday life has resulted in a heavier medication load than ever before, and since I've been deemed ineligible for resective surgery (for now, at least), I'm … Continue reading Becoming a Cyborg/Making Decisions/Drawing Questionable Pictures
Forty-five seconds. A blip, and likely an inevitable one, after which I rolled over and went to sleep. I'm making a real effort to convince myself that forty-five seconds mean nothing, but they keep tossing around my head, unwilling to simply be what they were—one complex partial seizure among dozens I've had this calendar year. … Continue reading Forty-Five Seconds
I woke up yesterday morning to two missed calls and a voicemail from an "unknown" number. I've been doing this chronic-illness thing long enough to know that 95% of the time, if you're a heavy user of the health-care system, an unknown caller means a medical office, usually one in a hospital. Sure enough, it … Continue reading Same-Day Appointment with My Epileptologist: Success/the Beginning of a Multi-Month Pregabalin Breakup