Good things are happening. First and, probably, foremost, I’ve started taking steps (using an “air walker” and with the assistance of two physiotherapists, but still). My first attempt I managed six; now I’m up to around twenty-five. It’s absolutely and unbelievably exhilarating to “walk.” It’s also very, very exhausting. Second, I passed my swallow test! … Continue reading (Literal) Steps Forward
… and, to be honest, I only remembered because a friend sent me a text wishing me a happy Purple Day. I’m pretty sure the fact that it totally and completely slipped my mind makes me a bad PWLWE (Person Who Lives with Epilepsy). Or maybe it has more to do with the other “stuff” … Continue reading It Was Purple Day (for Epilepsy Awareness) on Saturday
It was on a particularly challenging day last week that I received a message with an offer so generous it made me want to cry. (OK, fine; some tears were shed. I’m becoming an increasingly emotional beast with each passing year.) It was from my LEGO Fairy, who wanted to know if she could purchase … Continue reading Return of the LEGO Fairy
If you know me in “real” (scare quotes because what’s real, even, in this day and age?) life or read this blog, you almost certainly know that I’m a LEGO superfan. Those little plastic bricks aided me as I recovered from a brain injury; they’ve distracted me during long hospitalizations; they’ve rewired neurons fried from … Continue reading Yet Another LEGO Appreciation Post
Tonight is New Year’s Eve. It isn’t a “holiday” my husband and I have traditionally celebrated in any major way, mostly because my bedtime is around 9:00 p.m. This year will be much the same; our plan is to play a game in the late afternoon, have a festive meal (with the Christmas crackers I … Continue reading Looking Forward (Happy NYE!)
I'm taking a few minutes from my Boxing Day to wish you a happy holiday week (if that's relevant to you). I hope that you're striking a balance between celebration and safety and that you're responsibly marking the season in a way that feels right to you. In other words, Merry Christmas! Or not. My … Continue reading This Christmas
My husband and I each got a third dose of the Pfizer vaccine yesterday afternoon. So many (unexpected) emotions! Most of all, I’m grateful, relieved, and more optimistic than I was about my ability to hunker down and survive—emotionally and otherwise—whatever this next COVID curveball throws at us. In a word, I’m boosted. I don’t … Continue reading Boosted!
In case past blog posts haven't made it abundantly clear, I am, in general, a Christmas person. Like, the kind of Christmas person who would, and did, just this year, purchase five (yes, five) Christmas-themed sweatshirts, not to mention a Christmas-themed T-shirt and several pairs of Christmas socks. The kind of person who wears that … Continue reading Christmas Feelings
Although I'd been contemplating breaking my blog silence for weeks (how many posts have I started with some variation of this?), it took a moment this morning in which the more rational part of my brain reassured me that I was, as is my way, grossly overcomplicating the situation for me to go ahead and … Continue reading A Blog Post That Has Nothing to Do with Christmas Stickers
Every spring for the past many, my husband and I told ourselves that we were going to make better use of our patio, which is remarkably large for one belonging to a city apartment. In March, April, May, those shoulder months when the weather is periodically warm enough to allow you to imagine being outside … Continue reading The Patio
De Morbo Sacro: Life and/with Epilepsy 