My husband and I both got our second Pfizer dose last Thursday. We’d been scheduled to receive it at the end of July, so it was really, really nice to be given the opportunity to change our appointment date by such a significant chunk of time. 💉💪🏻✔️ 🎉 It’s been interesting to observe that relief … Continue reading Double Jabbed!
Last week I finally, and, I'll add, rather triumphantly, replaced an iPhone that I'd tolerated for much longer than it'd made sense to. Before I proceed, I'll acknowledge that yes, I'm supremely aware that what I describe are problems that I'm extremely privileged to be in a position to whine about. With that out of … Continue reading Acquiring a New Phone, OCD Edition
I don't have the time or energy to write a long post, but it's Purple Day, twenty-four hours dedicated to epilepsy awareness, so I owe it to myself and to this blog to remind you that epilepsy exists, it sucks, and lots of people live with it—including me (surprise). In other words, let's all wear … Continue reading Happy Purple Day!
I guess I jinxed myself with my last post about getting out of my neighbourhood—or maybe the problem was that getting out of my neighbourhood was way too exciting for my brain to handle—because two weeks ago, I made another journey to the hospital. This one unplanned, in an ambulance, and while actively seizing. It’d … Continue reading Hello, ER. (I Hate You, Phenytoin.)
I’ve been taking advantage of the last nice days of fall, and of my raging metabolism, which has turned me into a sweaty monster who prefers much-lower temperatures than I’m generally able to stand, by spending as much time as I possibly can outside, most of it (socially distanced from other customers) on the patio … Continue reading Preparing to Hibernate
Today something I’d started to think would never happen at long last did (happen, that is). Call it a September miracle, call it the cumulation of over nine months of intensive medical treatment, call it what you want. All that matters is that I’m home. Not that I was excited to leave or anything. I’ve … Continue reading And Now, Home(!)
As I’m sure you’re aware, last Monday—my transfer day—has come and gone. I didn’t back out at the last minute; I was in near-constant freak-out mode; I experienced a weird ambulance ride with a nurse (one of my favourites), me on a stretcher because it’s policy even though I’m mobile and could’ve made the journey … Continue reading Oh Hey There, It’s Me in the Neuro Ward
Well, readers, this has been quite the week. Let me start with the positive: I’m starting to feel significantly better, and I’m not dead. (I guess those two things are connected.) Oh, and I don’t remember most of Monday and Tuesday, which is probably good. Yep, I’m being pretty dramatic. I feel like I deserve … Continue reading A Terrible Week
A great/possibly the best thing about being confined to a hospital unit (for seven months, as of yesterday 😐) is feeling justified in wearing whatever the h-e-double-hockey-sticks I so desire. As it turns out, what I so desire, at least 90% of the time, are sweatpants paired with a novelty T-shirt. I’m well aware that … Continue reading Novelty T-Shirts and Why I Love Them
New visitors policies for this hospital system were recently announced. I was told yesterday that under the updated guidelines, my husband can now be classified as an "Essential Care Partner" and visit me twice a week for two hours at a go. My nurse was fantastic about getting the requisite paperwork filled out so that … Continue reading Ninth Wedding Anniversary: A PDA (Sorry, Husband)
De Morbo Sacro: Life and/with Epilepsy 