A Silvery Dilantinish Lining

I’ve been feeling so much better since that episode of status epilepticus. As I’ve had time to recover from the seizure itself, my Dilantin level has gradually come down, though it’s not yet at an ideal place (more on that in a moment). Best of all, and somewhat paradoxically, I’ve been having way fewer seizures … Continue reading A Silvery Dilantinish Lining →

A Terrible Week

Well, readers, this has been quite the week. Let me start with the positive: I’m starting to feel significantly better, and I’m not dead. (I guess those two things are connected.) Oh, and I don’t remember most of Monday and Tuesday, which is probably good. Yep, I’m being pretty dramatic. I feel like I deserve … Continue reading A Terrible Week →

This Post Is about a (Minor) Ketocal Explosion

I’m working on a normal-length post about something more important than what I’m about to document, but since an ... inspiring(?) event has transpired in the meantime, I find myself spontaneously moved to write. I mean, how could I not inform you that a Ketocal explosion recently took place in my hospital room? “Explosion” is, … Continue reading This Post Is about a (Minor) Ketocal Explosion →

Novelty T-Shirts and Why I Love Them

A great/possibly the best thing about being confined to a hospital unit (for seven months, as of yesterday 😐) is feeling justified in wearing whatever the h-e-double-hockey-sticks I so desire. As it turns out, what I so desire, at least 90% of the time, are sweatpants paired with a novelty T-shirt. I’m well aware that … Continue reading Novelty T-Shirts and Why I Love Them →

Ninth Wedding Anniversary: A PDA (Sorry, Husband)

New visitors policies for this hospital system were recently announced. I was told yesterday that under the updated guidelines, my husband can now be classified as an "Essential Care Partner" and visit me twice a week for two hours at a go. My nurse was fantastic about getting the requisite paperwork filled out so that … Continue reading Ninth Wedding Anniversary: A PDA (Sorry, Husband) →

Seizures, Supplements, and Sweatpants (Control!)

If you know me irl (internet slang!!!) or are a regular reader of this blog, you're probably aware that I'm someone who places great value on controlling every aspect of my life I possibly can. My ability to stick to rigid, self-imposed rules is, as I've learned, a power that I can use for good … Continue reading Seizures, Supplements, and Sweatpants (Control!) →

Birth-Yay! (Happy Birthday, Husband)

Yesterday I was in the same room as my husband for the second time in three months. In a happy coincidence that I hadn't, to be perfectly honest, actually considered when I asked for another exception to the hospital's current no-visitors policy and was given permission for him to come, it was both my husband's … Continue reading Birth-Yay! (Happy Birthday, Husband) →

Choir with Dad

My dad, an accomplished musician and musicologist himself, has consistently encouraged me to foster my own appreciation for and skills in the musical arts. When I was a child, this came mostly in the form of my taking piano lessons—only briefly from him, though, since we quickly discovered that this kind of father-daughter collaboration wasn’t … Continue reading Choir with Dad →

Ask and Ye Shall Sometimes Receive

I'm continuing to make lots of progress and am super grateful and all that, etc. etc. However, as you've probably gathered from the extensive complaining in which I've indulged in previous posts, it isn't all sunshine, unicorns, and high-energy ketogenic supplemental beverages. Although there've been many challenges, the one that's made me wallow the most … Continue reading Ask and Ye Shall Sometimes Receive →

Six Months, and All I Have to Show for Them Is Significant Progress and a Cheesy Paint by Numbers

While eating the second avocado of my breakfast this morning, I realized that today is the six-month mark of this hospitalization. Six months. That's ... a significant amount of time. Seriously. So much has changed outside these walls since I got here: seasons have passed, a pandemic has begun, major change is taking place in … Continue reading Six Months, and All I Have to Show for Them Is Significant Progress and a Cheesy Paint by Numbers →