If you know me irl (internet slang!!!) or are a regular reader of this blog, you're probably aware that I'm someone who places great value on controlling every aspect of my life I possibly can. My ability to stick to rigid, self-imposed rules is, as I've learned, a power that I can use for good … Continue reading Seizures, Supplements, and Sweatpants (Control!)
Tag: OCD
It’s Nice Out, and I Hate It
Looking out my window and at the weather app on my phone tells me that it's no longer winter, which is a little hard for me to process since this hospital stay began in early December and the last time I was outside was in February. Lemme tell you: I'm not a fan of everyone … Continue reading It’s Nice Out, and I Hate It
A Glimmer of Hope for “a Challenging Case of Very Intractable Epileptic Seizures”
It's a pretty normal Saturday in hospital land. I've eaten many things and drunk many Ketocals. I've socialized a little (something I wasn't doing much of when my postictal psychosis was at its worst) and considered building a new LEGO set. I've had a seizure. My seizure frequency means that I wake up knowing that … Continue reading A Glimmer of Hope for “a Challenging Case of Very Intractable Epileptic Seizures”
Another Update
Hey! 👋 It’s me with another of my incredibly sporadic updates. There’s been a lot going on in my brain over the past few weeks, so naturally I'm choosing now, when I’m most likely to commit egregious spelling and grammar errors and to produce a longwinded and disjointed post, to break my blog silence. If … Continue reading Another Update
A Short, Self-Congratulatory, and Poorly Edited Post (I Went on a Trip and Didn’t Die!)
As I write this, I'm on my way home from the vacation in British Columbia that I had to reschedule last month. As I actually post this, I've been back in Toronto for several days. This means that I made it to my departure date without needing to reschedule for a second time; made it to … Continue reading A Short, Self-Congratulatory, and Poorly Edited Post (I Went on a Trip and Didn’t Die!)
Some Frozen Treats I’ve Eaten This Summer, Most of Which Were Delicious
In my last post, I promised that the next one would be about ice cream. Since I’m a woman of my word, here are ten paragraphs about ice cream. Count 'em. I began writing this post as I greet each new day: by making a list. Since along with being a woman of my word … Continue reading Some Frozen Treats I’ve Eaten This Summer, Most of Which Were Delicious
Postponed Trip, Surprisingly Positive Attitude
I slowly worked on a post about a then-upcoming solo trip to Victoria and about how much it meant to me and about how significant it was, etc. etc., for over a week but didn't manage to finish it because I kept having health setbacks that made it difficult both to articulate what I wanted … Continue reading Postponed Trip, Surprisingly Positive Attitude
Redefining Productivity (Again)
Though I set myself the (completely arbitrary) goal of writing two blog posts in May, for various reasons, most of them medical, I wasn't able to follow through. It's not as if I forgot or didn't make an effort to get the job done; it's just that every time I sat down to force myself … Continue reading Redefining Productivity (Again)
Endocrinology Appointment for the Weak-Boned and Strong-Willed
My bone health has been an ongoing concern due to my anticonvulsants, several of which can cause decreased bone density, and to my eating disorder. My dread of this year's bone scan and endocrinologist appointment was not, then, entirely irrational, though it was admittedly a little extreme. Unsure whether or not I could handle the … Continue reading Endocrinology Appointment for the Weak-Boned and Strong-Willed
(Seizure) Status
Well, friends, the last while has been, um, interesting, at least from a seizure perspective. At the core of this interestingness have been continuing Dilantin woes. I really wish that Dilantin weren't the anticonvulsant that seems to be most effective for me in terms of seizure control, mostly because a) it's been a pain in … Continue reading (Seizure) Status
De Morbo Sacro: Life and/with Epilepsy 